Foot changes : Hi I’m taking Leflunomide and feel ok... - NRAS

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Foot changes

63 Replies

Hi

I’m taking Leflunomide and feel ok on it despite having a bad time a couple of weeks ago not been able to move . I had horrendous hip pain which took 8 days to get moving again .

This week I noticed a lump in my foot under my big toe . It’s a little sore I’ve no idea what it is but I know for sure it’s definitely not a bunion because I don’t wear tight shoes and definitely not wore heels for about 25 years I’m more a flat shoe fan .

I’m also having neck pain when I move it from side to side . And back pain too .

I’ll post an image of my foot x

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63 Replies
JFlay profile image
JFlay

My foot looks similar, sometimes it's red and sore, and I've never worn heels or tight shoes too! but rheumy said it is a bunion!

Sorry don't know how to add a photo 😥

in reply toJFlay

It’s fine x.

What is she doing about it ? I thought it could be damage 😕

in reply toJFlay

You can write a post to show your toe . I don’t know how to add photos on other peoples posts , maybe someone can guide us 😊

JFlay profile image
JFlay in reply to

My rheumy did ultrasound on it and said it was a bunion, so did my GP. Mine started developing several years before my RA diagnosis.

Riddlemethis profile image
Riddlemethis in reply toJFlay

I’m the same JFlay , I was told it was a pressure sore , because of Ra putting more pressure on one foot all the time , now my ankles and feet are knackered lol , have to laugh or we would be cryin an awful lot 🙃

JFlay profile image
JFlay in reply toRiddlemethis

Yes we do! 😂 my toes, feet, ankles and the 'bunion thing' are constantly achey and stiff 😟

JuneRose profile image
JuneRose

Looks like your going through a flare and some damage might be happening I would definitely get it checked and maybe get referred to a podiatrist to get inserts made they have made a big difference to my feet....

in reply toJuneRose

I’m going to ask my GP , I’ve changed Rhuematology and my new patient appointment is some time away -August x

RA57 profile image
RA57

Morning I have exactly the same thing and went to orthotics who are making me some insoles. I was told that this lump was due to my big toe bending in towards my other toes🙈 the joys. Hope things settle for you soon 🤞

in reply toRA57

OOOh that sound bad

Have they given you X-Rays

Does it look the same as my lump ? Sometimes it rubs on my Indoor shoe , I can’t walk barefoot anymore , I was always in bare feet .

Xx

RA57 profile image
RA57 in reply to

It’s not too bad quite a big lump but it is more uncomfortable when I am having a flare I have a podiatry appointment in July so I will see what they say. I have found I need wider shoes but always use to just wear flip flops but they don’t support. My advice would be get your gp to make a referral to the podiatry clinic although I did a self referral on line and my gp made the referral to orthotics. 😊

sylvi profile image
sylvi

I am in a boot after having surgery on my toes and the by the little toe(they tell me its a bunion) the one by the little toe had the bone shaved off and two toes broken to straighten them. I have had hammer toes and it has made walking hard. I had one foot done last year and now I am getting mid-way through six weeks of non weight bearing for this one.xxx

in reply tosylvi

Your very brave having foot surgery . I couldn’t do that even if I was in agony .

The thought of been put to sleep and letting someone do surgery just terrifies me

Your so brave

Hope you make a speedy recovery after surgery💜

So RA can cause bunions too . XxxxxzX

sylvi profile image
sylvi in reply to

I didn't go to sleep I had it under epidural darling.xx

Kalimera57 profile image
Kalimera57 in reply tosylvi

How long did it take Sylvi? My right foot is a mess and I can only wear 2 pairs of shoes.

in reply toKalimera57

You’re the same as me Kalimera57, I only have two pairs of shoes I can wear because my right foot is a mess. I dread them wearing out as it’s so difficult to find any that fit comfortably 😞

sylvi profile image
sylvi in reply toKalimera57

I don't think it took no more than an hour darling.xxx

Kalimera57 profile image
Kalimera57 in reply tosylvi

That’s not too bad. Hope you’re enjoying your garden Sylvi.

AgedCrone profile image
AgedCrone in reply to

Bunion surgery is literally a walk in the park these days. I was walking in loose trainers in 12 weeks & driving soon after.

Thankfully the days of painful bunion surgery are long gone and after about a year you couldn’t even see the scars.

So if anyone is offered the surgery accept it thankfully...because it’s on the list of non life threatening surgery that is fast disappearing.

medway-lady profile image
medway-lady in reply toAgedCrone

So true get in done while still available as its worth it. x

😱 Oh Lordy 😱 that’s even worse 😭 xxxx. Yes you’ve probably guessed I’m the world worse squeamish person . Any sign of blood I’m off 😳 xxxx. You’re brave x

wishbone profile image
wishbone in reply to

Sylvi is one tough dudess! :-)

in reply towishbone

Yes she is 💕

medway-lady profile image
medway-lady

A bursar soft squidy lump ? bunions are not caused by tight shoes just genetics really, mine was removed and foot straightened 2 years ago. Bunions are seen on Xray etc as they go around the big toe so see you GP for referrel for surgery. Orthotics are a waste of time and can make it worse, so sorry I'd say no to Podatrist but ask to see Orthapedic Surgeon. When mine was done they did release claw toes too and it really was'nt painful and scarring is side of foot except for 2 small ones on top so hard to see. Wear shoes with a small heel can help too.

AgedCrone profile image
AgedCrone

Talk to your rheumy nurse ...you could have a neuroma under your foot.

It’s doubtful Lfl would be responsible.Sadly you sound like most of us with

Painful joints all over the place.

These little benign lumps under feet can be injected...or surgically removed.

Bunions are usually on the inside of your foot on the big toe joint, & from your

photo, you don’t look to have a bunion.

However, you don't only get them from wearing unsuitable shoes! They run in

my family & my mother took me to the doctor with one on each foot when I was 7.

Eventually ......years later ....they got so bad.....I had surgery to remove them, & for the first time ever I can wear strappy sandals....if only it would stop raining!

ThyroidThora profile image
ThyroidThora

Oh dear! Try not to worry about it. Bunions can be hereditary (did anyone in your family have them?) and it could the start of one. Or perhaps it is a RA flare up. The photo of your foot looks a bit dark on my laptop so it's hard to distinguish what it is. Try to take it easy and put your foot up and rest it.

TT x.

Rahelp profile image
Rahelp

If you search the nras website you should see a seminar they did on foot changes due to ra. You will understand what is happening to your foot. The back pain and neck pain i have as well. Its all down to ra im my case and the damage caused by ra which then changes to oa. Hope your ok. They may cjange your meds if you tell them about the new developments. Goid luck

Rahelp profile image
Rahelp

Sorry just read some of the other replies they will only do surgery on your foot if you have good circulation. I cannot get anything done with my feet due to poor circulation

nomoreheels profile image
nomoreheels

Hiya Caroline. Despite not wearing heels or tight shoes (it was summer so in loose sandals) my feet had the beginnings, or a little further on, of bunions. This was the month before I was diagnosed when I had the first symptoms in my feet. I also had bunionettes (same effect by the little toe) but both reduced in size when I started responding to hydroxychloroquine, my first DMARD.

I do have a larger bunion than back then, nothing like my Nan's were though, & it doesn't trouble me so much. Both also show signs of enlarging when I'm not well controlled, when I'm in need of an increase in meds or an addition to methotrexate. This is why I'm sharing this info, in case it could be similar for you, that you're not as well controlled as you could or should be possibly?

in reply tonomoreheels

I’m still waiting to see my new Rhuematology consultant . I was referred to a hospital closer to where I live , the living Rheumatologist wasn’t very good so I’m changing again x.

I’ve seen my doctor today who’s sending me for X-rays in my foot back and neck as these are bothersome too . Things never get any easier 😖x

pd118 profile image
pd118

I wear guys runners

in reply topd118

I’ll look them up thank you x

pd118 profile image
pd118 in reply to

I saw three foot doctors first one great next two b.s. I am on the fourth appointment in a couple weeks hope they are good !

in reply topd118

Good luck 😉

in reply topd118

Good luck. X

pd118 profile image
pd118 in reply to

I wear new balance

Kariss profile image
Kariss

Hi, I have a lump at the top and base of my big toe which is a hallux rigidus. It’s not a bunion but is caused by osteoarthritis which I have as well as RA. It started small and grew over the years into a substantial lump caused by an overlay of bone. It is operable but I didn’t want to have it done as my toe will then be fused. Ask the doctor to check if yours could be that - an x ray will tell. It is often painful and I cannot bear any pressure on it. I now wear Skechers shoes as they are very light and comfortable with a foam insole. I would recommend them to anyone with foot problems, a bit pricey but worth it to be able to walk again!

in reply toKariss

I’m getting it x-rayed tomorrow x

JDQuinn75 profile image
JDQuinn75 in reply toKariss

I ware the same thing Kariss. Both of my feet now have knots below the big toes of my feet. Like you said it can be painful. Skechers do help me as well but what also helps me to are my ugg Olsen moccasin slippers. They’re the most comfortable when my feet hurt. Osteoarthritis can hit like hell in your feet how well I know.

pd118 profile image
pd118

I too nodules base of big toes

munchkin profile image
munchkin

I also have a large painful lump, but is behind my small toe neatest to the arch.

in reply tomunchkin

That sounds painful . I had mine x-rayed today , it was odd how he asked me to position my foot 🤭, maybe it’s the new way of doing it ?

munchkin profile image
munchkin in reply to

Mine isn't so bad it really only effects me during the summer, then it feels like I have just stood on a piece of Lego.

in reply tomunchkin

Yes i know that feeling . I can’t walk barefoot anymore I was always barefooted x

in reply to

Me too Reikimaster, really miss wearing nothing on my feet 😞

in reply to

Walking on the lawn ☹️

On the cold floor ☹️

On a soft carpet ☹️

It’s rubbish ☹️x

in reply to

It sure is 😞

JDQuinn75 profile image
JDQuinn75

I have the same thing on both of my feet now and they are both in the same spot as yours is. That’s a sign of arthritis in your foot . I have osteoarthritis. Both of my feet get very sore . More so my right foot than my left but it can be very uncomfortable. Have you been diagnosed yet for any type of arthritis? Like osteoarthritis. That’s what mine is

in reply toJDQuinn75

Hiya

I’ve just had a letter confirming Arthritis in my foot . You were right x

JDQuinn75 profile image
JDQuinn75 in reply to

That’s what it looks like to me. I’ve had the same knots on both of my feet for a few years now. You’ll notice that it’ll probably get bigger as time goes by. Mine has on my right foot more so than the left. It can get tender at times but not always. You may also feel pain in your big toe at times as well . I feel it in mine as well as my smaller toes now on both of my feet. They get to painful to try and bend them at times. You may feel that later on as well. Everyone is different when it comes to pain from arthritis. Good luck.

in reply toJDQuinn75

Did you notice them develop at the same time on both of your feet or did one appear then the other a lot later on .

Has your Rheumatologist suggested anything like change medication for you x

JDQuinn75 profile image
JDQuinn75 in reply to

The one on my right foot appeared first small enough I could barely see it unless I took my finger and rubbed right at the joint of my toe. It was about a year and a half later I noticed the one on my left foot in the same identical spot. It hasn’t gotten as big as the one on my right foot as of yet. But now the both of my feet hurt constantly some days it hurts to even stand on my right foot the way it is now.

in reply toJDQuinn75

I’m so sorry to hear this .

Have you got anything to help in the way of special slippers shoes or even a soft mat to stand on x

JDQuinn75 profile image
JDQuinn75 in reply to

I use my ugg Olsen moccasins a lot. I even ware them when I do my errands away from the house. Ive also gotten to the point that I’ll drive to work in them then change into my Skechers when I get there. Believe me some days I don’t want to change out of them do to they seem more comfortable than the ones I Chang into.

in reply toJDQuinn75

Are you talking about a bunion or something else please? If not what is it called. Thanks 😊

JDQuinn75 profile image
JDQuinn75 in reply to

No not a bunion at all. It’s called a nodule . It form at the joint of the big toe of the foot when it’s affected with osteoarthritis or another form of arthritis in the foot. Mine is OA that I have and it’s very painful at times.

in reply toJDQuinn75

Ah ok thanks, it was just no one said what it was and a lot of us have bunions from RA. 😊

in reply to

Kittyj. If you read my posts you’ll see that the diagnosis is Arthritis 😊

in reply to

I did read your posts. I have arthritis in my big toe joint which has formed a bunion. That’s why I asked.

JDQuinn75 profile image
JDQuinn75 in reply to

Kittyj except mine isn’t from ra. Mine is from OA. I haven’t been diagnosed with ra as of yet. All tho that does run in both side of my family. Both OA and RA run on both side of my family.

JDQuinn75 profile image
JDQuinn75

Although I have worn my black uggs to work a few times and stayed in them all day. Believe me when your feet get arthritis in them you start to find the most comfortable shoes. Even if it means waring your slippers to work. The Olsen moccasin slippers are very stylish and can actually pass for a casual work dress day.

Pawz4me profile image
Pawz4me

I have bunions on both feet, much larger than the one pictured. They're painful! I don't know whether mine is due to RA or genetics or just age. Or all of them. I've always been rather flat footed, even as a child. Can't blame shoes, as I haven't worn high heels in almost 24 years. I stopped wearing them long before the bunions developed. It's getting harder and harder to find shoes wide enough to accommodate them.

in reply toPawz4me

Maybe get them checked out via xray .

It’s the only answer really .

Mine is in its infancy right now . Does hurt now and then but .... I’m dealing with it .

Good luck in finding your answer x

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