Hi 🙂

[Blackwitch]

Does anyone take a Vitamin D supplement with injectable Methotrexate? I have all my Metoject pens, folic acid & all the kit. I have a blood test request for whoever will do it & an appointment with my GP on 17 May to talk to him about what the surgery can do to help (notice! very politely put 🙄). Tomorrow is ‘M-Day’ but I’ve been so much better since my IM Depo-Medrone on 23 May. Nic xx

[helixhelix]

You’ll be just fine! And hopefully it’ll start working before the depomedrone wears off.

I only take vit D when my levels drop, ie in winter. So I get tested in autumn and usually still just below normal so I get topped up to get me through the winter months.

[Blackwitch in reply to helixhelix]

Hi helixhelix

I had been taking Vit D but stopped when I thought spring was here. 🙄 I’m thinking of taking them again for a few weeks to give myself a boost. I can’t see any sign of the sun. 🥶 x

[Dobcross1]

Hi Nic yes I take a Vit D supplement and Vit K (I read they go together..) with injectable methotrexate. No ill effects but I don't know if it's doing me any good either 😂😂

[Blackwitch in reply to Dobcross1]

Hi Dobcross1

I wish we could know exactly whether things we take are working! There’s one hell of a lot of guess work going on! All we can do is go by blood test results & how we feel. We never know what’s going on inside until something goes wrong. It’s all very ‘crystal ball gazing’! x 😂😂😬

[Gnarli]

Yes, I take a vitamin D supplement because, like the majority of us in England, I was deficient in it despite being lucky enough to spend at least 6 weeks of the year abroad in the sunshine

[Pamelah5]

I cannot absorb Vitamin D , need to take Vitamin D - maximum strength capsules twice a day throughout the year, despite sitting out in the sun and going abroad.

[attatel]

I take vitamin d all the time, as I've had to have intensive courses of it a few times due to very low levels. I'm on MTX, although orally not injection and haven't had any problems.

I get bad depression and anxiety when I have low vit d, and as my mobility is poor I can't get out much so it's a must for me.

[vonniesims in reply to attatel]

I take it all year round with Methotrexate, Benepali and Folic Acid. My ViD levels are normal

[Grumpyoldmare]

Yes, I have to take vit D and calcium as well as injectable methotrexate. No problems and GP prescribes the supplements.

[oldtimer]

It's best practice to find our what your levels of Vit D are before starting on therapy. Then you can know what sort of dose you need. Find out whether you just need to take it in the winter months like many people in Northern countries as we don't make enough from the sun or if you need it all the year round.

[CagneysMum]

I’ve been taking vitamin D for a year. My sunshine vitamin.

[Hezekiah]

Good looking dog ball!

[mirren]

I have to say I think those of us on MTX and sulpha prob need all year round. We can't tolerate the sun. There is a school of thought that all people with autoimmune disease should try to ensure they are nearer the top of the range (50-200 in uk).

Also we need daily doses not weekly. And heavier you are more you need.

I have recently been unwell, severe enthisitis in spine/ribs and fatigue ++. My rheum team were about to switch my biologic. I eventually asked GP to check vit D and it was 23. After just 2 weeks I felt so much better. 4 months on I am taking 8000iu a day when often people are told to take 800iu a day!

Anyone interested in more and on facebook, join bit d deficiency UK open discussion. They advocate taking Magnesium supps, a vitamin called K2_(NOT vitamin K) and boron. They claim that without cofactors when taking high doses you can end up with hypercalcaemia as the magnesium and K2 helps the body utilise calcium in bone where it's supposed to be.

Must say I am really disappointed that rheums don't counsel is to keep an eye on vit D as deficiency is such a common cause of pain and fatigue, and we are more prone to it. Imagine I switched biologic and it failed? All because no one ruled out a simple vitamin deficiency.