Hi everyone

Hi everyone

I am a 40 year old female and have been living with RA and Fibromyalgia for the past 8 years. I am firm believer that there is always someone who needs to hear your story. Living with chronic illness in my case I would say chronic panic. Has been very difficult. Those around you try to understand but it's not really possible unless you been there yourself. Sometimes all we need is a listening ear...others just to be left alone...we are not always easy people 😜

I am thankful to still be able to have a full time job. I work as a private nurse and some days I wonder if I would make it out of bed...fear and discouragement can rise up and as many of you may know if we stay for long in that place it can be just as crippling as the disease itself! My faith has been my anchor. My hubby has been my strenght and my children the "push" that I need to keep on fighting. Anyway, I am always looking for new ways to fight this fatigue, inflammation and pain. Therefore I look forward from those of you that have any great tips!:))

Blessings 💕

Vivi12

9 Replies

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  • Have you tried Vodka??....lol..just kidding. I just take it one day at a time. I am thankful that I have a loving understanding husband. I have been on sick leave for almost 6 months from work. I am still trying to find the right "cocktail" of meds to control this awful disease. I think my new rheumy and I are almost in clinical remission and I couldn't be more happier. I am looking forewards to going back to work in the new year. It might only be part time, but at least I will feel more like my old self.

    Welcome to the site.

    take care

    Sue

  • I may need to try that😁

    Yes, my "right cocktail" has not been discovered as of now. It's funny how doctors always tell us about how wonderfully drugs work. Then you speak to those taking them and you hear different stories.

    I am glad to hear you are well enough to get back to work!! I hope your doctor finds your "miracle cocktail" soon. I know it's possible...sometimes it just takes a bit of waiting :)

    Blessings,

    Vivi

  • You can always try something along side of your meds like anti-inflammatoty diet or LDN that has really helped many with FM pain. Take care:)

  • I need to research LDN. This is the first time I hear about it. What kind of diet do you follow?

  • Hi Vivi12,

    I follow the AIP diet, lots of info on the net. If you want to learn more about LDN, ldnresearchtrust.org is a good place, good luck:)

  • For relaxation try adult colouring in,i use glitter pens as they are thicker than pencils.xxxxx

  • Hi Vivi12.. Welcome to the group. I am curious how they can tell fibro from RA. The pain levels on both are significant...

    I wish I had some useful tips on the fatigue and pain, but not so much unfortunately. I am struggling with all of that too.

    Mostly we just take everything "one day at a time" and try not to project too far into the future, but still try to know that it WILL usually get better - it just might take a while...

  • Vivi12, my heart goes out to you with both both RA and Fibromyalgia, it is good to hear your faith is your anchor. My prayers and thought for you today.

    Esther

  • Hi vivi, i fnd baths with Epsom salts very helpful with pain. I also use magnesium spray oil when bathing not suitable. Also arnica cream from boots. Heat of any description, lap mats, microwave wheat bags, hot water bottles etc. Essential oils etc. All the best

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