I'm a participant is this scheme and it's a great project. They're designing an app that uses digital tech (smart phone) to monitor disease activity in a way that will hopefully lead to quicker, more effective medical intervention when it's needed.
You just need to be able to get to Bath for a first meeting where you download the app. and are taught how to use it. At home you then take pictures of your hands and fill in the app. as required. Follow up meetings measure grip strength.
It's fascinating and I can see that it has huge potential. It's nice to be able to play a part in its development. There's no payment, but your travel is covered.
They need more participants so if anyone in the SW is interested, here's the link...
There are several apps. This is is different as it’s being trialled in conjunction with a hospital, and is being designed as an interface between patient and clinicians to specifically enable better, swifter treatment of flares.
Brill, thanks. It's not at all scary or onerous and I'm finding it very interesting. The info about RA that forms part of the app is the best I've seen at describing RA. It's all written by medics at the U of Bath, which of course has on of the biggest banks of data on RA in the country. Everyone is working really hard to design something that might help patients both predict flare-ups and access treatment in between RH appointments.
I am also doing this Study. Really pleased to be part of this and just pleased to do anything that could help those of us already suffering with this horrible disease and those yet to be diagnosed.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Info fo vulnerable people 
Elbow xrays
Disease Activity Score - - DAS
Bad timing!
