Saw my Internist yesterday and had to report continuing pain for about 6 hours from getting up in the morning.
He started me on Sulfasalazine because he doesn't think an increase in MTX is the answer. So, nervously waiting to see what that will do, and he also upped the prednizone again. Too much pain for me to handle. So MTX 15 mg's, prednizone 15 mg's, and now sulfasalazine 1000 mg's. He wants remission for me and says we'll decrease the pred. again, starting in a month.
To his credit, he believes me about the pain which he thinks is moderate to severe still, even though the blood work looks wonderful. Plus he manipulated my joints, which hurts. I wouldn't let him touch my foot; it is too painful and my reflex might have been to hit him. He was okay with that. 😬😧😊
Just an update.
Oh, and he told me no more than a 1000 IU vitamin D or I will suffer toxicity. Oops! I was ramping up to 2,500.
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Nanna71
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Hi, I am on the same cocktail. My rheumy started me on steroids and Sulphasalasine first then methotrexate a few weeks later. Her approach is blitz it and then see how it goes. That was 1 year ago . Go with it n dont worry. Just be prepared fot luminous pee, bright yellow. Oh and drink plenty it helps .
Thank you for the reply and extra info. That's what my Internist said too - get it under control and then see if we can reduce the meds. Okay... scary med. number 3 👀
Sulfasalazine was tough for me the first month, but got easier to take. After six months my doc added lefluomide and that made a huge difference in my pain level. Hope it all works for you.
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