Anyone taking sulfasalazine?: Hi i was diagnosed in... - NRAS

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Anyone taking sulfasalazine?

mel_reeds profile image
5 Replies

Hi i was diagnosed in 2015 and started mtx which didn't agree with me. I'm now on sulfasalazine which works for my Ra, for the most part, pretty well. However, I now have persistent swelling of my lymph nodes on my neck. It's been scanned and the ENT consultant says it's fine. Has anyone had anything similar?

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mel_reeds
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Moomin8 profile image
Moomin8

Morning☺

I take sulfasalazine (2 tabs twice a day) and have been for some time. I haven't had any swellings though. If you're not happy with ENT's findings, then maybe get back in touch with your rheumy. Wishing you well.

dgray78377 profile image
dgray78377 in reply toMoomin8

Yes, I got the lymph nodes on my neck as well which began to make it hard to swallow. I was literally choking at times. I asked my doctor to take me off of the medication.

Nuttyshirlz profile image
Nuttyshirlz

Morning

I’m on methotrexate just started sulfasalazine five weeks ago but I’ve had to stop it for week I don’t have lumps with it.just other side affects but my nurse said sometimes if you stop it for week then start again side affects can go so hopefully it does 🙂

helixhelix profile image
helixhelix

I've been on Sulpha for 7 years now with no problems. Why do you think it's the drug? Could be something else completely?

Presumably you've had blood tests to check for infections and so on? but keep pushing your docs to find a reason....

mel_reeds profile image
mel_reeds

Thanks for the replies. I've had scans and ultra sound plus tests for various infections and all negative. The lump came up about 3 months after starting the drugs and if I don't take it, it seems to reduce in size. The trouble is the drugs work well for the RA so in two minds about it

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