This might take a while for you to read,i don't though will see how much rambline i do.x
Just got back from the hospital re; my that is swollen. Well all the x-rays have come back good and there was several taken some that made it very uncomfortable,but there you go. The nice young consultant explained to me that my body created a lining round the new knee which is full of RA he explained it very clearly to me that though he couldn't 100% say it was the RA he was nearly 90% sure that is what the cause of all the swelling round the knee. Then the silver fox head consultant came in and had a chat with us. So i am discharged from him as the knee is holding up very well.
Problem no.2 steroids,i hate them as you know,well sod it i am coming of them after the damage they did after years on them. I am still suffering taking them i might as well suffer without them. My whole body is riddled wit RA from my eyes to my tootsie toes. I mean what else will i have to cope with,god only knows . Sorry for the ramble i just needed to get it out there after the tears from when i got home so now it is onwards and upwards. So my hair,nails and my scooter will be gaudy as well as my hair. Just today is a pity party day for me so sorry for me feeling sorry for myself.xxxxx
Written by
sylvi
To view profiles and participate in discussions please or .
59 Replies
•
Awww Sylvi!!! What can I say! feels better to have a rant, stay strong! and shine like a star! 🌟🌟huge hugs! Xxx
Well it's been hard if you remember I used to call you mummy Sylvia as I lost my mum and you were so kind and helped me with my Ra and my partner is poorly with chronic illness we ok thought I hope your ok try stay strong
He got part of his tummy troubles sorted by them taking out a load of polyps now he is waiting for a hernia operation. He is doing his best to keeping me going as my body just keeps getting worse.xxx
Ruth i would second that i can't wait for the warmer days to come. When we came home from the hospital i saw a snowdrop starting to poke its head so spring can't be far behind now can it.xxxxx
My bulbs are starting to break through and a couple of dafs are doing well, buds will be seen in a day or two. I love my garden as you love yours so thats what im hanging on to.
My Camelia has a flower already out darling. As to doing my garden it is going to be very difficult from now on as my back which was already weak has joined the party and causing me problems.xxx
Oow I must go and look at our cam. I do understand. Dont think im like you as can do the odd 10mins on the chair or with oh there to get me up and down.
The only thing flowering is yellow bush and christmas rose...bother just cant remember proper names...so much brain fog today.
My brother in law built me a bespoke trough outside back door for my 60th birthday last year (infact exactly a year ago as im 61 today). It has been the best thing. We now not only pay someone to clean house but pay a gardener too. I get bossy with the gardener, frustration as I want to do it.
All pip money spent, thats what I need it for.
I must work out how to put fotos on as I would love yo show you the trough.
Well lying on bed and due out for tea so must get going.
I think the yellow thingy your on about is a winter jasmine darling. Happy birthday darling you still have some catching up to my 63 darling,but have a lovely day whats left of it. We might have to employ a cleaner even if it is only to dust and clean a few windows inside. It might cause a row with him asleep in his chair(lol) but we will have to see.xxx
Yes yes winter jasmine and the other is Hellibour brain less foggy, maybe glass of champagne helped 🙂🙂
I understand, many men dont like others coming jn and cleaning. My oh is not like that for a number of reasons. I really recommend it, helps you to relax and enjoy your home that you have worked so hard to get.
Thank you for you good wishes, been a strange day but its now time for bed.
Champagne wow wht is the occasion,not my knee problem thats for sure!!! Hubby was furious when i asked our daughter to find out about prices where she worked at the time.xxxx
It was my 61st birthday and our days end about 8pm so 5pm is evening. My oh brought me up a glass of champagne to enjoy whilst I got ready to go out for tea yesterday.
My friends oh wont have cleaner. Its an odd one as they dont do things the way we do them and it takes some getting used to, but with oh copd and he was told 11 yrs ago he should stop work and saw consultant other day and oh finally has agreed he cant work, he is exausted. His peak flow is 140 and dropping. So neither of us are able to do house. Anyway sylvi hope you feel rested as this new day is upon us. Its very cold here...yuk. take care dear lady. Xx
Off course it was your birthday i remember now. All i want a cleaner for is to polish and clean the windows indoors,but you would have thought i wanted to take oer entirely.I think now if i broach the subject i might get a different response. We will see. I hope you had a lovely evening with your hubby.xxx
Thank you it was very pleasant. Went with my sister and brother in law who has cancer and did very well to be there.
Yes I find picking my moment and bit by bit oh comes round, its tacktics, like you I have a lovely supportive oh. I dont know about yours but mine can occassionally dig his heals in and that can be a surprise.
I do hope you are feeling a bit improved today. Xx
Yes Ruth i am okay this morning. So glad you had a good time with your family ans especially your bil who also managed to come out despite his cancer. Just goes to show you that people who are ill themselves managed to come out and that they care about you darling.
Oh yes my hubby can be stubborn when he has a mind to,but maily he is easy going.xxx
I'm bk on them nasty little thingy pills tapered down to 7 then wham bk to where I started from flair from hell and pain in joints burning but I'm told constantly from ra nurse bk pain not ra anyway just take more pain killers I've no energy left by afternoon and that was trying to get dressed for another app time to get pjs bk now it's hard work silvi you take care and a big hug xx
Oh Sylvi, that's so unfair! I truly hope things improve for you very soon. I'm looking forward to the warmer weather too although one of our fuchsias is still blooming and so is the broom. It cheers me up to see colour in the garden. I shall be taking a lead from you, by the way. My scooter has been delivered and I'll be hunting for sparkly things to cheer it up. Huge hugs, lovely lady
So sorry you're going through all this. I'm glad you posted your rant. It helps to be able to do that, but especially with people who understand. I haven't been on the forum for long, but is there any way you can get another doctor? Sounds like your healthcare team is crap. I'm from from the US so, as you know, it's quite different here with insurance. Every company has a different rules, but typically you can change docs. Don't know how the NHS works. Please do something kind for yourself and know you have friends here. Sending hugs from across the pond ❤️
This was the surgeon who did my knee when it waas botched the first time,so RA is not really his area,but he was pleased my knee was still secure and embedded in well.So that is the good news really..xxxx
Sylvi do not just stop the steriods it needs to be a taper or you risk heart problems. Be careful and act with caution its never good to make a decisionon the rebound so wait until in a better frame of mind.
Sorry to hear your woes.... hope they have some new ideas about how to help apart from the dreaded steroids. If not use your knee to give them a bit of a kick....
I've just discovered seni-permanent nail varnish - truly cheering!
Glad all the support is out there the garden is such a problem my partner loved pottering around in ours till we had bit of harassment issues with neighbours and he got told " you been ill for 12 years now so why ain't you dead" this is the narrow minded peoplewe live around its caused him to have anxiety and agrphobia now we don't go out much at all now
oh dear, hugs and sympathy from me. I feel better for sitting in front of my light box for 30 mins every morning.
Snowdrops and Helibores out in my cold northern garden, but snow forecast now. It's definitely getting dark later which is cheering. Hope tomorrow is better.
Okay ladies and gents! I’m over the sea in Minnesota, and there is nothing blooming here! We have ice, snow, wind and clouds. The gardeners are out working in their trucks plowing snow this time of year. That is my rant!
Sylvi, it is encouraging to me to see you write “ now it is onwards and upwards” after a particular eventful day. You must have an amazing resilient spirit, and I admire you for that.
I love the photo you shared with your post. From looking at the leaves, I recognize it as a little primrose, but the flower is a double flowering type? If not, what is it? Sylvi, I ask you because here in Minn, there is an old fashioned yellow orange primrose that would bloom in spring, and smell like Fruitloops cereal. My gramma had them, and when I saw your photo, I had such a warm memory of her and got hungry for...you guessed it. Well, it was such a great moment, and I have you to thank for it. 😁
Happy to oblige darling. It is a primrose darling and i love them i am always buying them. We went to the garden centre again this week for seed potatoes and onions for the allotment and yes you've guessed it i brought more as well.
Onwards and upwards i don't have a choice darling do i. I certainly understand people taking their own lifes when they get confronted with a life limiting disease, NOT THAT I WOULD EVER DO THAT TO MY FAMILY. XXXXX
Oh dear, I'm sorry Sylvie. Life can just suck sometimes. I can't think of anything more useful to say than that. My sympathies. X
Thank you all for your kind words and i have loved all aout your gardens as well. Today is another day and i continue to strive through the quagmire of my disease with more stamina than yesterday. Again thank you all and i love you all.xxxx
Yes you can,but the party is over as it is a new day,but you can join the fighting warriors party if you want. We old uns are not quitters we may have our bad days,but we still come up fighting.xxxx
Oh yes please, I’d like to join your fighting warriors party having had my own pity party lately. I’m ready. I love reading your posts and all the lovely photos you post. Take care and hope today is a better day for you.
Take care Sylvi. There’s a lot of love for you on this site. I saw primroses last week on a bank near Bristol and how those few little flowers lifted my spirit!
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Well here I am!
How long to get on right meds?
Can't get any help. Should I go to A & E? Am I just a big nuisance to everyone?
