So anyone following this saga will know that after being told for ten months I had obvious symptoms of RA for which I also test positive. Suddenly in April after failing on four dmards I was told the symptoms I had weren't RA and must be just random pain with no cause. I was referred to a physio for an assessment as the pain in my knees must be mechanical. I was put on a waiting list.
I paid for an independent physio assessment and did not give them any background. The assessed me and said I had bilateral knee swelling and elbow swelling consistent with inflammation from a systemic disease like RA. I did not fit the profile for fibromyalgia.
Well today the NHS physio assessment took place. First question they asked why had the rheumatology physio passed me on to them to assess as they were muscular skeletal so this was inappropriate.
Then they examined me. Their view - my symptoms were wholly consistent with inflammation in my knee joints and my elbows there was no way this pain was mechanical and they could see nothing that wasn't consistent with RA. They have referred me back to the RA physio and told them they need to liaise with the consultant and get an answer for me as to why they have it seems discharged me when I am quite clearly very unwell!