I was on remicade and insurance refused to pay for it.. So I was off for about 4 months last year.. I went into a flare and developed fluid on heart, pnemonia, and kidney issues.. It was eventually approved.. But stopped working this summer. My doctor started me on Orencia in October. However, Mypain radiates into different joints.. One day in my knees and another in my shoulders, to wrists and thumbs, to feet..it moves around my body.. Orencia isn't not lowering my SED rate..pain has been pretty severe.. I just increased my prednisone to try to help... When pain is bad.. It is like my joints are on fire... Any ideas...
RA Help: I was on remicade and insurance refused to pay... - NRAS
RA Help
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HFraser
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Hi HFraser
I truly understand your pain. Every morning I wonder what the joint pain(s) of the day will be. And then I just do the best I can.
❤️❤️❤️❤️ Hope yours gets better soon!
Doesn't sound as if it's effective for you if you started it in October? Try a different medication? You need to be seen again anyway...
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