Crazy RA

[BonnieT]

How can I be feeling 100% good one day and the next crying with leg and foot pain unable to clean up after dinner? Then hours later ok again? What the heck!

[sylvi]

Sad to say that the nature of the beast i am afraid. Hugs.xx

[BonnieT in reply to sylvi]

Thanks, Sylvi! I know. I just needed to hear it again.

[popsmith1874]

Bonnie that's the Beast just letting you know it's still there xxx

[BonnieT in reply to popsmith1874]

Thank you. Knowing I’m not alone helps. Stranyas that sounds.

[BonnieT in reply to BonnieT]

Should be: strange as that sounds.

[oldtimer]

I know exactly what you mean. I felt great yesterday and went for a walk, climbing (slowly) up to a church on a hill with super views in all directions. Had time to read a couple of short stories in the evening and went to bed feeling pleasantly tired and a bit achy ....then the pain started in my feet and hands, then my back and couldn't sleep for ages. Had to take extra pain killers. Woke up this morning feeling like never getting out of bed again, but had to because it was blood test day...

[BonnieT in reply to oldtimer]

I’m an old timer, too. Hate not being able to do things I’d like to do.

[daisychains58 in reply to oldtimer]

It’s all too common it seems. Sad to hear your woes. I’m the same, think I’m feeling good and off I go, I can walk, yay, do too much which isn’t much at all really and pay big time for the next day or so. I just take prednisone now down to 4mg a day and pain killers. Don’t know if I’m doing the night thing or not but dmards made me sick and didn’t work much anyway.

Hears to a sunny day and another walk and no pain. Hugs to you

[Ruth12345]

Yup. Understand.

[beanieboy]

Welcome to all our lives

[BonnieT in reply to beanieboy]

Nice to know I’m not alone but sad that we all have to face this “beast.”

[rosie1928]

So difficult to get family to understand too at times. My brother had a lung transplant yrs ago. I felt both elated and jealous. Where oh where is my body transplant? 25 years now...Sometimes I feel cheated out my supposed right to be well and other times I am grateful that it is not worse

. I feel for you. Right now I am surrounded by unfinished chores and it really does help that I have this site and can read all the wise loving comments.

Rosie x

[Mmrr]

It's the constant changing I find most difficult to deal with. its such a bummer.

[Hessie5]

That's what I hate about RA/D, I sometimes forget I have it then there’s that slap that's says I’m still here! Had a super day yesterday, I was stupid and just had to eat my freshly baked homemade bread, could not resist - I am now laying up in my bed with tender points in fingers and ankles..😕.... However, my bread was delicious, served with goats cheese and homemade marmalade, along with happy kids too 😁

[Cheylann in reply to Hessie5]

Do u think eating the bread has caused your pain today? I never knew that bread could do this.

[Hessie5 in reply to Cheylann]

To be honest I am not sure, as I had cut out gluten and wheat as read bad for RA and inflammation. I should mention, despite cutting out this stuff, my inflammatory markers where sky high. I recently had an allergy test which showed I am susceptible to Wheat! So this disease has made me somewhat paranoid 😕.

I have a new view for 2019 and shall be eating a bit of everything in moderation - hence indulged in my homemade bread!

[BonnieT in reply to Hessie5]

I’ve tried the gluten free route but no real help found. Good luck Hessie5. Homemade bread sounds so good.

[Cheylann in reply to Hessie5]

Yes I think it's more about your sensitivity to wheat and your paranoia. Personally I don't think food makes your RA worse.

[BonnieT in reply to Cheylann]

Wheat can. In bread. White breads are the worst.

[Cheylann in reply to BonnieT]

Hasn't made me worse so not convinced

[LippyLu in reply to Cheylann]

The Pattison Program seems to indicate dairy is the worst, but I don’t know what evidence backs that up...

[BonnieT in reply to LippyLu]

I will have to look into the Pattinson program. I don’t do much dairy as I am lactose intolerant. But I do love ice cream but only a few brands work ok for me. Like Ben and Jerry’s Cherry Garcia, a treat I allow myself every month or so. 😊

[LippyLu in reply to BonnieT]

The more full fat a dairy product is, the more tolerable for someone who is lactose intolerant (I am also).

[BonnieT in reply to LippyLu]

I did not know that. Thank you.

[daisychains58 in reply to BonnieT]

A2 is the best for us sufferers and hard cheese like Parmesan the most tolerated so I believe. I cut bread and any white carbs from my diet. Also pork is meant to be inflammatory. I paid for my indulgences over the festive season, particularly with the ham.

I find the living day to day hard, can’t make plans as one day your great, maybe even for 3 days then it hits you like a ton of bricks and I can get out of bed, well I don’t want to get out anyway sometimes lol. Take care.