One symptom missing. No stiffness. : Don't have a... - NRAS

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One symptom missing. No stiffness.

lovemydoggy profile image
27 Replies

Don't have a definitive diagnosis, but pretty darn sure early RA. Rheumatologist said it was a possibility back in April. Symptoms were very minimal then, but have and continue, to increase. One thing that doesn't fit is the complete lack of stiffness, which I know is a hallmark symptom. Any input would be much appreciated.

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lovemydoggy profile image
lovemydoggy
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27 Replies
sylvi profile image
sylvi

Every person who has RA/RD never ever gets the same symptoms as another one. One might have the stiffeness yet another won't, Write a diary about your symptoms ready when you see the rheumy darling.xxxx

lovemydoggy profile image
lovemydoggy in reply tosylvi

Thanks for the reply. I'm keeping a diary of symptoms as I wait for my referral.

Shalf profile image
Shalf

Hi there, they also say that if a joint on one side becomes inflamed then it's very likely the same joint on the other side will become inflamed too, kind of mirroring. That hasn't happened in my case. Different joints affected. What Sylvia has advised is what I would do. A diary is very helpful. X p.s - I love your little 🦉 😄

sylvi profile image
sylvi in reply toShalf

Darling i only had symptoms on one side for years and th other side was never as bad as the right side has been. All my problems have been worse on my right.xxxx

Shalf profile image
Shalf in reply tosylvi

Same! Right side is where it started and where it affects most. xxx

sylvi profile image
sylvi in reply toShalf

It was my right knee that was really bad when i had it replaced. My right side is the domimant side always. The left side is catching up these days.xxxx

Shalf profile image
Shalf in reply tosylvi

My right hand has been traumatized poor thing! Neck op was right side too. RA likes to be right!

sylvi profile image
sylvi in reply toShalf

There is no escape from it once you've got it darling sad to say.. My right side has always been the worst.xxx

lovemydoggy profile image
lovemydoggy in reply tosylvi

My right side too. Seems like no matter what level it is my right hand and right foot are always a tad swollen.

lovemydoggy profile image
lovemydoggy in reply toShalf

Thanks Shalf. I took up painting. Good therapy. Once I forgot I had pain I was so immersed in it. Anyway, I just decided I'd try it and painted an owl. Now it's become a hobby. So that's my wise owl.

I hopefully asked the rheumy if RA was always symmetrical. She didn't even say it was a possibility, but I was thinking it. She looked at me with a wince and said no. Mine is now sometimes, kinda, sorta. In other words, just does whatever it feel like. Yesterday and today very mild. Just there enough to let me not forget about it. Changes all the time.

Shalf profile image
Shalf in reply tolovemydoggy

Lovely owl painting. I like it, colours are great.

Re symmetrical joints, my Rheumy said this typically occurs. Nothing appears very consistent with RA, guess we just have to deal - come what may! X

lovemydoggy profile image
lovemydoggy in reply toShalf

Indeed

sylvi profile image
sylvi in reply tolovemydoggy

I have got my acrylics out now Christmas is over i will get some canvas's to colour in(pre-printed canvas) I did a colour by numbers of a cat before Christmas for my daughter in law and she was chuffed to bits with it. I will buy some more colour by numbers now we are in the near year theyare not as easy as they look,but i did enjoy making them. I also made my daughter a winnie the pooh quilt cover for her bed as well. I intend to make something for my son,the one i was going to do for him was eaten by a pest in the garage while waiting for it to be put on a frame.xxxx

helixhelix profile image
helixhelix

I didn't have morning stiffness when first diagnosed, which was fine by me! Then suddenly after a couple of years it appeared. RA can be very odd.

rosie1928 profile image
rosie1928 in reply tohelixhelix

Same thing happened to me. the stiffness came years later and came with a vengeance.

lovemydoggy profile image
lovemydoggy in reply torosie1928

Years, that's amazing. Tiny bit of my brain saying it can't be RA if I'm so limber. Oh well. Looks like RA to me more and more.

VeronicaF profile image
VeronicaF

I didn't have swelling at the start, and I thought I can't have RA as people on here had swelling, well I have now

lovemydoggy profile image
lovemydoggy in reply toVeronicaF

Good point. I've got the swelling. It's all so complex. I can see how it takes a really long time for some to get a diagnosis.

beanieboy profile image
beanieboy

Hi, I truly hope you don’t have as it’s pants to have to deal with it. So here’s hoping you get a clean bill fro RA.

lovemydoggy profile image
lovemydoggy in reply tobeanieboy

Here's hoping! Thanks.

Gnarli profile image
Gnarli

I didn't have stiffness in the beginning, just hands like inflated marigolds. It was when the feet started that stiffness joined in making me walk like the tin man. As Sylvi says, we're all different in our experience of our condition. Wishing you well

popsmith1874 profile image
popsmith1874

As Sylvi says keep a note off symptoms for your Rheumy and here's hoping it's not RA xxx

Hessie5 profile image
Hessie5

I had the stiffness, mainly right foot and ankle, tenderness but never really swelling. It spread September 2018 to left foot and ankle and finger. As mentioned, it varies for us all.

Jaxine profile image
Jaxine

Mine started 5 weeks ago First symptom was on the ball of my left foot, I couldn't walk on it properly. One week later my left arm was affected, I basically had to sleep on a chair all night it was so bad then my left knee I was reduced to crawling around I could even get onbor off the loo. Then a few days later it was totally symmetrical it happened on the tight hand side right foot, right arm, right knee. Then my fingers, feet, wrists and my neck again symmetrical always starting on the right hand side. Basically 4 weeks of a massive flare. My bloods came back high C Reactive protein came back at 57 should only be 0.4. Positive RA. Very stiff huge swelling. I'm fine now had steroid injection and started Mtx.

lovemydoggy profile image
lovemydoggy in reply toJaxine

That's hopeful the medication worked. I'm anxious to find out what the rheumy says.

Jaxine profile image
Jaxine in reply tolovemydoggy

No I've only been on it 3 days think the steroid did for a little while

lovemydoggy profile image
lovemydoggy in reply toJaxine

That's right Mtx takes a while. Forgot about that.

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