Severe coccyx pain

[RAgemz81]

This has been going on for prob about a year now. It's worse at nite and I have to pay on my back with various cushions due to agonising hip pain.

The past wk I've been woken twice by the sheer agony, couldn't sit up but thankfully my crutches are next to my bed so I can use them.

I'm battling the rheumy at the moment as he was positive my pain is all now due to fibro not RA but sent me for an MRI to basically prove to me I have no damage.

Mri showed hip bursitis in both hips and degenerative changes in my knees.

I use crutches around the house and a wheelchair when out. The pain is just too much.

None of my symptoms (bar light & noise sensitivity) are fibro.

It's all still based in my joints which do swell but not alot.

I'm so tired and so done with fighting. Life has been real crap recently I'm exhadusted.

On fentanyl patches, amitriptyline, hydroxychlorquine, meloxicam and codeine.

Anyone got any tips for making the rheumtologists listen and may attention??

[weathervane]

Have you had steroid injections for the bursitis , I found that they do give some relief. I hope you can get some answers 🌸

[RAgemz81 in reply to weathervane]

Yes I had both hips done the first wk of Sept. It did make a bit of a diff but still couldn't touch my hips Or wear tight clothing etc and still been having to use wheelchair.

Thank u xxx

[weathervane in reply to RAgemz81]

Maybe you should ask for a referral to physiotherapy , they might be able to provide help and advice. It is wearing to be in constant pain.

[Need2knowN]

I’ve got coccyx pain... I wasn’t sure if it was part of the RA.

[fred42 in reply to Need2knowN]

I have Coccyx pain and have always been told very firmly by the rheumatologist that it is not to do with the RA, think I did damage year's ago falling over when skiing.

Hope you improve.