Does anyone have Dermatomyosistis?: Hi, I joined this... - NRAS

NRAS

37,100 members45,833 posts

Does anyone have Dermatomyosistis?

2 Replies

Hi, I joined this group because I saw people talking alot about inflammation, pain and Methotrexate. I didn't know it was a group topic more about RA. I believe I am experiencing some symptoms of it also though. My sister has had it for years. My hopes were to find someone that may have Dermatomyosistis that could share info with me! I was diagnosed in 2008 and took 60mg Prednisone and Methotrexate for a year and I was much better afterwards. I am developing some other symptoms now and going back on some meds. Thanks for reading my post.

Read more about...
2 Replies
weathervane profile image
weathervane

Hi Derma , I googled your condition and it would appear to be quite rare. I hope you have your symptoms under control and are feeling a bit better, best wishes 🌸

Lintilla profile image
Lintilla

Hello Derma - yes, I have Dermatomyositis.

There's a separate HU community, run by Myositis UK, where a few of us congregate:

healthunlocked.com/myositisuk

Myositis UK also has a Facebook group - I don't subscribe, but I understand it's more active than the HU community:

facebook.com/groups/2432609...

Hope this helps - or please feel free to message me if you want.

Not what you're looking for?

You may also like...

Does anyone have experience with gastroparesis?

I came across this condition looking up symptoms of Sjorgren's. I've had trouble with my stomach...

Does anyone else have it ?

Just being to doctors and it now seems I’ve high blood pressure so along side my methotrexate and...

Does anyone on here have infusion therapy ?

Hi there I was diagnosed around 4 yes ago, I've been on numerous meds but just methotrexate and...

Does anyone know the different brand names for subcutaneous methotrexate?

Hi guys :) I have been on methotrexate injections (20 mg) for RA for about 3 years, and I have...

Vaccine call-up

Morning all, I just got my vaccination call-up today and am booked in for Friday morning. I'm just...