Does anyone have Dermatomyosistis?

Hi, I joined this group because I saw people talking alot about inflammation, pain and Methotrexate. I didn't know it was a group topic more about RA. I believe I am experiencing some symptoms of it also though. My sister has had it for years. My hopes were to find someone that may have Dermatomyosistis that could share info with me! I was diagnosed in 2008 and took 60mg Prednisone and Methotrexate for a year and I was much better afterwards. I am developing some other symptoms now and going back on some meds. Thanks for reading my post.

[weathervane]

Hi Derma , I googled your condition and it would appear to be quite rare. I hope you have your symptoms under control and are feeling a bit better, best wishes 🌸

[Lintilla]

Hello Derma - yes, I have Dermatomyositis.

There's a separate HU community, run by Myositis UK, where a few of us congregate:

healthunlocked.com/myositisuk

Myositis UK also has a Facebook group - I don't subscribe, but I understand it's more active than the HU community:

facebook.com/groups/2432609...

Hope this helps - or please feel free to message me if you want.