RA Awareness Week 2018 #ReframeRA : Rheumatoid... - NRAS

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RA Awareness Week 2018 #ReframeRA

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Rheumatoid Arthritis (RA) is a condition that lacks serious public visibility and awareness!

This RA Awareness Week, we want to raise its profile and reframe some of the misconceptions around it.

We partnered with YouGov recently to conduct a survey of how the public sees Rheumatoid Arthritis. Here's what we found! #ReframeRA

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6 Replies
keeta profile image
keeta

Thank you love .thought it was x

Thanks Katie, no surprises there, i don't even use the 'arthritis' word anymore, it's just one symptom; i just say I've got an auto immune disease: stops all the silly suggestions 😊

popsmith1874 profile image
popsmith1874

Spot on Katie I don't bother using the Ra word now sick off the stupid comments I receive, so just tell them I've got rheumatoid disease or an automane disease

AgedCrone profile image
AgedCrone

GP's could help by acknowledging RA actually exists & explaining the condition, not just telling people who complain of pain & swollen joints that "at your age you must expect aches & pains, take an aspirin!"

Which is was what my GP told me 20 years ago & that is still happening!

From personal experience I know how the general public regard RA ...I have been told many times "Well- you don't die from RA do you"?........well sometimes you might well have!

More imaginative truthful advertising would help...describe symptoms that many people don't recognise as RA......hence stop wasting time getting a diagnosis. I don't think jokey cartoon type ads show the severity of RA....show real people - explain how young people suffer......tell the truth...don't sugar coat RA. How many people know RA affects other parts of the body besides joints?

Look at recent cancer advertising campaigns they really hit home.

in reply toAgedCrone

nras.org.uk/ra-awareness-week

Take a look at the video we've released this week - to as you quite rightly say make general public and GPs take this condition seriously.

Please tweet or follow us on facebook to see all we're doing this week to raise the profile of RA

Ruth12345 profile image
Ruth12345

I dont tweet or Fb just use general internet. Do you think RA will ever be renamed?

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Eleanor-NRAS profile image
Partner

RA awareness

If you can find this on you tube DO watch it. It's amazing . It's just called Rheumatoid arthritis...
allanah profile image

RA awareness day coming up!

http://rheum4us.org/press-release-rheumatoid-arthritis-awareness-day/