NRAS
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Nurse fuming 😤

I went occy health today were this nurse said I quote her words “ you have give up” not one bit happy and why don’t I ask for low dose steroids, I said wouldn’t it be great if that’s all I had to do to cure me is take steroids I’m very annoyed I was shocked at what she said, Or am I been over sensitive, oh she also said she as crohns so she knows what it’s like and she take low dose steroids and she is fine, I’m sick of it, I told her, half the nurses think rheumatoid patients are cranks and it’s true they do,why some of these woman are nurses is beyond me , I’m not happy 😆

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Hi try no let It get to you I've heard it on here a few times with the nurses .It is annoying and they should just keep out of it and give you the jags etc and listen if you ask for advice .I would not say much next time if same nurse and just get the treatment. .i had same with physiotherapy when leaving said I'm no here for aches and pains only diagnosis then why all the questions from her then I waited 8 weeks to see her .I will not see her again.hope you get more understanding nurse the next time ajay .

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Hiya it was regarding me been of work occupational health and been assessed because I can’t physically run around after 19 patients no more, I’m destroyed on my feet , that nurse is acheeky cow I doubt she even knows what my biological drugs do, I even ask had she had infusion for her crohns she said no just low dose steroids, she done my head in more I thought about her the more annoyed I got. Thanks tho .

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I sometimes after it you think more and your fuming a it ignorance from her I think take care

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Thanks just her attitude had enough

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One of those people who have decided they know about our condition more then we do living through it ! Make a complaint or ignore her a pity her ignorance. Stupid woman xxxx

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Emma yes one of those fuming

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You know what Emma I know her manager personally haven’t seen her for some years but she is a lovely girl I think she would go mad I think I will chose to ignore her but if I get her in 6 Weeks time I will be telling her, my fella was with me today hate actually putting him through this so I didn’t say much but next time I will tell her emmaim proper struggling I hover half the living room and I’m learning in walls furniture anythink to relief my pain I’m my feet back and the rest of it that’s how much I’m struggling lately. X

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Ignorant people give me a headache too. We are living with mostly invisible illness and already have seen eyes rolling before. Try to pity her for her prejudices

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Lesley I know her type believe me meet to many like her and I’m far to long in the tooth. It’s just ignorance plain and simple but she thinks she a know it all .only for my fella been there as he is very mild mannered were as I am not I held my tongue but I hope I see her next time.

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Yes this is an invisible illness. So true. From most of the photos on this site you all look amazing!!

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I have two Chihuahas as my profile. They look amazing. Maybe we should all post photos of us looking great and then alongside. ‘Middle of flare’ photo

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No thanks I don’t want to scare the nice people .

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I had a lovely experience yesterday. I was deadly tired and in pain and changing chemists . The new chemist asked me to go into town to ask for the changeover and internally I thought oh no... how am I going to do that...I am so tired but I didnt show my disappointment,

Within a few seconds the new chemist said... Dont worry I will make the call myself. He treated me like a VIP customer.

He was obviously sensitive to my condition and felt compassion.

Its times like that makes me feel grateful that there are some people out there that are inherently kind. It made my day.

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Ha ha! I have a photo of myself when my grandson was born ... I was in the middle of a flare and I was ruby red ...burning up!!

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I will tell her if I see her in 6 weeks she isn’t getting away with that with me.

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I was treated poorly by a nurse at hospital when my open carpal tunnel surgery was cancelled after a 7 hour wait in the day surgery suite as other surgery had run over.

She was so so rude. I rang next day and asked for a formal complaint form and lodged it against this dreadful woman.

I had been waiting 2 and a half years for surgery as a public patient, then I got in touch with my local member of parliament who also is minister for health.

Lo and behold, I received a formal apology, another surgery date within two weeks and was first on the list!

I had a different nurse on duty when I arrived who couldn’t have been more kind.

It’s not fair to pick on someone when they are in pain.

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That is really odd!!

As a chrons patient she should know better than to say anything at all!

My son has chrons and like RA it is a very traumatic experience, people don’t really see your illness, think you are faking your condition to get out of school/work....and low dose steroids only work for a short period of time if you are lucky and even then there are symptoms you live with every day.

I understand it’s frustrating dealing with RA every day and being surrounded by people who cannot comprehend your pain and struggle ( even doctors who treat you are clueless to your pain), and it is really infuriating that your nurse would be so insensitive!

Either you misunderstood her meaning completely or she isn’t really a chrons patient ( because believe me when I tell you their auto immune disease is horrible and they would understand your pain and struggle ).

I would go back and speak to her and tell her how her words made you feel. Maybe she can explain herself and perhaps she meant to encourage you in some way rather than how it came out of her mouth.

Don’t get too upset in any case. It’s not going to do you any good. If it does turn out that she is a mean person , report her and move on with your treatment as your docs have prescribed and never mind her .

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I hope I see her in 6 weeks time , she did have crohns so she said she is just one of them know it all people got her cards marked I’m good at reading people and she is one of them types.

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That woman should be banned from the profession she is so sensitive NOT. I don't usually slag people of,but what planet is that woman on. She is there to help you not critisise(excuse my spelling,my brain not working) you . You should report her Did you ask her when she became a dr and knew your health better than a dr. Some of these nurses think because they have a few qualifications that it gives them the right to tell you what to do,maybe you are on steroids as a lot of us are,what treats crohns doesn't always work for RA. Aww bloody woman has made my blood boil on your behalf. xxxxx

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Oh syl she probably thinks she knows more than the doctor she is one of them hope your ok.

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Good on you Sylvi. I thank God that my Gp is so kind and sweet to me and believes me. Even though she is so good I still get very nervous when i visit. I am anxious that she will think i am inventing new pains!!! xxx

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Tell me about it Rosie,every time i go to the drs i have more pain and they can't give me anything more than what i am taking now. And as to the rheumy nurse she is so swamped with patients she doesn't have time for walk ins anymore. I am getting to the stage when i can't be bothered to go anymore because it seems just a waste of time.xxxx

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Yes and they try to tell you that fish oil reduces pain!!! It didnt for me. Medical marijuana has been accepted here in Australia but they are having trouble rolling it out as the doctors need to be trained. I went to a meeting a year ago and nothing seems to have happened.

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I didn’t find fish oil helped but it did make my hair glossy and all the local cats would follow me around. Lol

I am in Australia and been asking about Medical marijuana too and can’t get a single answer out of any of my doctors and yet the first crop here in Western Australia is to be ready in 4 months.

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Yes there is a facility in Perth that is growing it just for that purpose. I was told that at the official meeting. The medical marijuana will be THC free so I dont know what the problem is. Medical marijuana is also very useful for epilepsy patients and those with severe nausea.

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Yes I read July. I have asked my GP and he keeps being ‘vague’

My daughter and I had a conversation about this very topic and she said she was violently opposed because she had used marijuana and developed some psychosis.

I think there is a lot of misconceptions out there.

I am in large doses of Tramadol SR and Tramadol instant for breakthrough plus lyrica for nerve pain from multiple slipped lumbar discs.

I have no side effects from these as I have been on them for 14 years now. But I would appreciate the chance to try it to see if I can get a bit more pain relief, even just on bad days.

I think the perception is that people think you can take it for fun?

I have been told that it’s possible to obtain OxyContin etc and if you have no pain, you get a ‘high’

I wouldn’t know that. My pain clinic specialist told me if you are in severe pain, there is none of that effect?

Again it’s hard to get answers.

I think it could be prescribed for very specific reasons and under supervision. I don’t think there should be a problem with that. Drug addicts are treated by doctors and receive methadone from the pharmacist. Methadone is highly addictive.

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Marijuanna still illegal in the UK and to be honest I don't know if i would take it. I can't take morphine and i wish i could. I take slow release tramadol morning and night and naproxen when i am in a lot of pain.xxx

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Yes marijuana illegal here too I think, not that I would use it anyway. I only take things after consultation with doctor and rheumatologist and have pharmacy review every few years to check for drug interactions.

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Hi I have the same problem I think RA nurses need more training. I was an officer in the Ambulance service years ago and we had good training on how to handle RA patients including spending time in a unit. It’s about time they had real training on how bad we feel and the real effects of the drugs we have to take. I have appointment on Friday and I am dreading it . They should be support and help not someone we dread seeing, it’s just good we have each other to sound off at, keep positive if you can .

Pam x

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We do need the old school type it’s all about paper work, I was trained the old way it’s changed so much.

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I can tell you from experience that because it is rare for someone to be hospitalized for RA in the large country hospital I trained in I never came across RA until i did Silver Chain and even then I didn't get training. I think most of the cases went to the city. General nurse training is just that... general and covers so much ground that you dont learn a lot in each area.

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Hi vonnie10 I’m sorry to hear about your experience, no you’re not being over sensitive. I too wonder what made them choose such a people’s profession , most of them are not happy with what they are doing with their lives and look like they just couldn’t be bothered doing what they are supposed to be doing .

Unless you have RA it is very hard to understand how painful this can get , im so over people thinking RA is what they’re grandma had or an Aunty had that I just don’t tell any1 how much pain I have .

I’m on orencia injections I had the nurse over once to show me how to do it properly and then I told her not to come anymore .

RA is hard enough to live with so try to ignore those who are so ignorant and arrogant , you don’t need that stress as well on top of every thing else .

And this nurse who has crohns just because steroids work for her it doesn’t mean that they’ll work for you .

Vonnie good luck with everything,

Don’t forget there are people out there who do understand .

Keep smiling

Vonnie

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long term steroids are never good so in my eyes she isn't being managed effectively. she also needs her manager to speak to her but remember the ra nurses try their best and tjey are educated well. but they also do not have magic wands...

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I your right tatto.and ra nurses are like any profession mostly good but you do get a few with the posts on here to verify that should not be ra nurses

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I’m ok thanks tat I hate steroids I literally feel sucidal but I wouldn’t do that they make me feel so low , I could be sitting in the bloody Seychelles in the most gorgeous setting and I would feel awful, I was on holiday had a steroid injection a few days before sitting on alovely balcony with a gorgeous view and I felt awful that’s how I always feel with steroid there just not for me at all. What does she know if she thinks that steroid would fix my RA she was aknow it all and knows nothing, hope I get her next time, I’m calm today now she really really peed me right of.

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I can well understand how you feel hun some of them look at you like your just making it up bless u hope u feel better soon ignore useless ignorant people like that shouldn’t be in such a caring profession xx

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Deejojo thanks hope your ok . X

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This stupid shoulder is killing me but I’ll be ok got X-ray. Ext Monday and waiting on a scan x

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Wasn't belfast was it? There's one here who is particularly cold. I was told I "i just had to get on with it because Theres a limited amount of drugs for the likesbof you"

Lovely patient centred care.

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Cheeky cow no I’m in Liverpool got some nerve these so called caring people .

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WOW Did you tell her where to go and did you complain about her to the P.A.L.S at your hospital.xxxx

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No I didn’t Sylvi I’m waiting to go back in 6 weeks to tell her what’s is what my other half was with me I hate putting him through it so I stayed quiet but I will see her.

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Good for you darling.xxxx

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How kind of her, we are not addicts we are in chronic pain! Try hobbling along in our shoes for an hour?

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Hi I totally agree with your comments all of the nurses I have seen don't understand either we are just a number. Even worse I have a sister in law from hell who is a nurse she has stopped my side of the family seeing my mum in law because of her being a so called nurse. Money grabbing madam so so cruel x

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Yes and suppose to have a. Caring heart she sound like she hasn’t got a ring bone in her body, keep her at arms length .

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Hi Vonnie. I was told 24 years ago by a lovely RA nurse that people would not understand my illness as most of us look well. She had a great insight into the condition.

I was a nurse myself many moons ago and had RA patients.... i really had no idea of their daily frustrations even though I had read it in a textbook. What did fatigue mean to me? very little as I had never experienced chronic fatigue and exhaustion. What did chronic pain mean to me.... very little as I had never experienced it. But I tried to be as compassionate as possible while really I was light years away from what my patients were really going through.

It's normal to get cranky with the health system and individuals. Its frustrating. A lot!!

Yes there are days when we appear to 'give up' or resist new treatment. It our body!

My last resort for gout is cortisone. I have surrendered and gone into "dont care ' mode. I dont care what the side effects are anymore. I just want to walk on my feet. I resist mentally the amount of methotrexate I have to take but I am grateful for the healing it gives me. My mind is a battlefield and I dont think that a lot of the medical profession get it...... and I wouldnt wish it upon them anyway!!

I have a lovely GP who worries about the amount of painkillers i take. Bless her. my liver may be suffering ..... but it gives me a window of wellness everyday.

I think having RA does make us a little sensitive...... because we are always trying to understand it and find the balance. Pain makes us sensitive.... not being understood by others makes us sensitive. It is okay to be sensitive! You have a lot on your plate.

xxx Rosie

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I really wasn’t been sensitive it was out of order I was a nurse auxillary at the trust I wouldn’t dare treat a patient that way I know her game.

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Yes she sounds dreadful. What I meant was that we are already feeling vulnerable becasue of pain etc and if only the nurses knew that TLC goes a long way!!!!! Sorry if i got it wrong.

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I agree with all you said.

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I have RA and Crohns. This nurse needs an attitude adjustment. I understand your emotions as I recently had a very bad experience with my Crohns infusion nurse.

We already feel bad enough, we are ravaged physically and mentally trying to get better, and then someone carelessly toys with your emotions.

I agree some nurses should not be nurses.

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She wasn’t one bit sincere that’s what’s annoyed me at least you get it.

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Not only am I in pain but I hate to look in the mirror. I am 79 but I look awful. wrinkles, teeth, eyes, hair and to top it of I've got heavy on top. I try to remember the old days when my teeth were straight I could see and my hair was nice with a little curl. I guess I'm feeling a little sorry for myself today.

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Don’t be soft I bet your not really

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