Wow what a day! After I left my emergency appt at Kings , I was a blubbering, sobbing wreck!
I had a horrendous flare up on sat. Couldn't move the whole left side of my body and started steroids upon the advice of my mother in law, who is a nurse and also has rA. Well she told me off for that. She told me I should have gone to a and e ! Never in my 25 years of having this condition have I ever been advised that! She also told me off for wasting injections. I had one problem which wasn't my fault and she is telling me off! I haven't wasted any injections for 15 years!
When you are terrified that your injections aren't working and you might have to take more time off work due to ill health , I really didn't need her unsympathetic uncaring attitude. I said I would do what ever I needed to to work again. This time last year, Kings college hospital left me in agony for 9 months and I was unable to work for 7 moths. I never want to be in that position again so have some spare prednisolone in case . It is horrible knowing that you are completely reliant on the drugs that these people prescribe. Absolutely terrifying.....as I am sure you know!
Well we left it that I come off steroids slowly to see if humid a is working.( fingers crossed) and I left and made a formal complaint about her ( after I had stopped crying!!) I feel better now!!!!!
Hope u guys having a good day😊😊