Sulfasalazine

[LIZMAC10]

Hi I've been on Sulfasalazine for 5 months now and I've noticed my hair is coming out quite a bit . Will It come back while I'm still on it or will I need to come off it completely ? It's really getting me down 😕

[Hidden]

Hi lizmac10, do you take any thing else alongside your sulfa? Lady B x

[LIZMAC10 in reply to Hidden]

Hi ladybrunette. Yeah I'm on naproxen, thyroxine (but my thyroid is under control,it's just been checked,)adcal,and oramorph.

[Hidden in reply to LIZMAC10]

Hi, maybe it could be one of the other meds which could be making your hair fall out, I had bad side effects with mtx, I now take sulfa and seem to be doing fine now on this one, talk to your rheumy nurse, they may change your med for you or reduce it a little, hope you can get this sorted out, as I know not nice to loose your hair, best wishes to you, lady B 😊x

[LIZMAC10 in reply to Hidden]

I don't think it's any of the others ladyb . I've been on them for years now . But I will phone the nurse when I find her number lol 😊x

[Hidden in reply to LIZMAC10]

Ok lizmac10, I wish you all the best, be sure to keep us posted how you get on😊lady B x

[Hidden]

You will need to talk to your RA Nurse tomorrow hair loss can be problematic.

They may try you on either a reduced dose or another medication

BOB

[bassiefromholland]

When you stop with it your haar can come back. But you better ask you Rheumy for it!

Wish you all the best!

XxxBas

[Chrissycl]

I take a folic acid pill once a day and although my hair is thinning slightly the pill seems to help.

[LIZMAC10 in reply to Chrissycl]

Yes I'm on that also 5mg a day . Chriss

[Hidden]

Hello LadyBurnette68

Please keep us posted as I have been on sulfa now for almost 3 months

Take care

Sue

[Hidden in reply to Hidden]

Hi suzanndale, glad to here your on sulfa to, I've only been on 2 weeks so will have to see, but seem to be doing fine up to now with little side effects, how are you on the sulfa?😊ladyBx

[Hidden in reply to Hidden]

Hi Ladybrunette68, I was on 500mg x2 a day for almost 3 months but I had to up my dose to 1000mg x2 a day. My rhuemy believes that these pills are "the one" to make me "Me" again. Fingers crossed for both of us

Take care

Sue

[Hidden in reply to Hidden]

Hi suzannedale, I do hope that is the case for me to, fingers crossed. I started on 1 tablet a day for first wk, I'm now up to 2 a day, then tomorrow I go up to 3 and then 4 tablets a day on the last week, have they helped you at all with your RA as still early days for me yet! They say can take from 6 wk to 12 wk to have effect. I will keep my fingers crossed for both of us to, take care, lady B 😊x

[Hidden in reply to Hidden]

I was told by my doctor that sulfa could take up to 6 months to feel the full benefits, though some people reach full benefits 6-12 weeks.

I did feel a little better after 6 weeks.

Sue

[Hidden in reply to Hidden]

Thanks sue, glad to here you felt a little better after 6 weeks, I will keep you posted how I get along with sulfa, Speak soon. Lady B x😊

[Ruth273]

I'm at my consultants next week and have same problem, so am going to ask about hair falling out.

I will let you know what he says

All the best

[LIZMAC10 in reply to Ruth273]

Hi Ruth, thanks for that I phoned my rhumy nurse this morning and she said to give it a few more weeks to see how things go? Because I've just started taking Folic acid and she said it might help but I've not been on it long enough to see if it works . So please let me know how you get on thanks .

[ripecherries]

Hi, yes sulfasalazine made my hair thin very badly, i came off it and i it grew back although not at the front, if I lift my fringe up the bald patches at the sides are still there but fringe hides it. Also sulfasalazine turned my skin and eyes a sickly yellow colour and I got comments. Hope things get better.

[Hidden in reply to ripecherries]

Hi ripecherries

Sounds scary. I never knew sulfa caused those side effects. Hope all is well with you now. I will keep my eyes open about these side effects.

Sue

[cyprusmum]

Is it a common side effect of the Safa? Just nearing end of week one. A dodgy tummy and headache, but gotta keep going. The MTX just didn't agree with me at all, so want to try to stick with this.

It seems whatever we take for RA, there is always some positives and negatives about the meds.