Sulfasalazine anyone?

[Elphabafromcornwall]

I have a new med to add to the MTX I take - I am hoping for good results !!

[Philip]

I'm on sulfasalazine and it's been good to me but I think it is coming to an end, good luck with the new med and I hope it works for you.

Philip

[Wildschonau]

I have been on Sulfasalazine but it not have a great deal of effect for me. It did take the edge of the pain and stiffness but did not work very well I am afraid. I am now on enbrel which is great and to me a wonder drug.

[Elphabafromcornwall]

thanks guys for responding! I am looking forward to trying something new! I would like to get some improvement in my mobility! watch this space!

[Hidden]

Hello BOB here

I tried this years ago was on holiday and was unable too eat, for being sick ended in hospital and the drug was withdrawn after two week

Most unsettling unable to eat my English breakfast

All the best

BOB

[Kathyfitz12 in reply to Hidden]

I had exactly the same reaction but foolishly kept taking it as was told it would take 12 weeks to work. It never did work - but the bonus was I lost nearly a stone in weight !

[Kittykatxxxxx]

Good luck

[dtech]

I have been on it for 3 years now. No problems and with mtx and plaquinal, seems to be working. Good luck.

[Susanbet]

Hi. Sulpha was added to my mtx (by jab) month ago. Am now takin 4 tabs a day and stiffness in hands improved. Apart from some reflux have had no sickness. Hope you get on ok with this drug. X

[Elphabafromcornwall]

Sounds pretty promising and I am always the optimist! will let you know how it goes that for responding to me.

[lbtabby]

Taking 2gms sulpha for 5 weeks now, had hydroxy added last week 400 mg, I also have MTX (just about to start injecting that), and after 6 months have woken this morning for the and my hands are working properly! I am almost afraid to acknowledge it.... OMG , I can't believe it xxxx

[Kittykatxxxxx]

amazing ibtabby!x

[Sharon56]

Yes I am on sulphasalazine and methotrexate. Hope it all goes well for you.

[Scottishlad]

It was my first DMARD. Worked for me for while before other drugs were added to the mix. You may find your sweat is more likely to stain light coloured clothes and it can need extra treatment to get them clean. Also you may find you are more sensitive to the sun. I used factor 50 when on holiday especially after hydroxychloroquine was added.

I had no other side effects.

[Andrea_Shapiro]

I've never noticed any positive results with sulfasalazine, although I take them as advised. I was placed on 2g a day 3 years ago, as I'm allergic to methotrexate. It was prescribed to complement Enbrel, so I suppose I'm never going to have the 'lesser experience' of sulfasalazine (but I do hope it's working in slowing down my RA). As for side effects, my wee is orange, and there's an orangey coloured scum when I take a bath.

[binlid]

i take metho and sulpha but dont think the sulpha is doing anything and need steroid on friday but we all different gl wth it

[Elphabafromcornwall]

thank you for taking the time to reply folks! I must bath rather than shower to see if my bath water looks odd - I do have quite bright pee!! lol

[Elphabafromcornwall]

Well, I have been on the Sulfasalazine for 8 weeks and felt sick all the time even waking me up at night and with eggy stinking burps. So, I stopped then my consultant suggested that I start it again and escalate the dose slowly allowing my body to adjust - I took it for 2 nights in a row - just 1 tablet (supposed to build to 4 a day) and felt so sick was up in the night again wandering about thinking I was going to be sick - and stinking burps! I could barely lift my head from the pillow without feeling sick. So, I have stopped again. Don't think he will be that happy with me when I go again next month. I am on MTX and can cope with the sickness that gave me at first as I take it with a meal.

[kikiw]

Have been taking it for 6 weeks, no side effects, and it has really, really improved my (mild as yet...) arthritis! Very happy, and hope it will last forever