Wondering if anyone out there with anti-ccp positive lab results is getting any real relief from this awful disease?
I’m anti-ccp+ and I know that disease course tends to be more severe with that lab result.
I was on plaquenil for about 4 months and Experienced no relief. My rheumy switched me to sulfasalazine about 2 months ago. I feel like things are getting worse if anything. Joint pain, body aches, malaise/nausea on a near-constant basis. I have better days and worse days but I haven’t actually felt good in a long time.
For the time being I’m staying away from biologics and mtx as I was hoping to get pregnant at some point soon. I’m considering putting the pregnancy attempts on hold to try other treatment options. I’m starting to wonder whether that’s the right path for me anyway... I’m afraid I won’t have the energy to care for a child. I also can’t help but think that any child I have will be at risk of developing the same disease. I would not want to bring someone into this world just to make them suffer.
I’m curious to hear about the effectiveness of different treatments for accp patients and insights into how people cope with managing this disease and parenting.
Any responses will be greatly appreciated.