I've just been looking at the toolkit on here (which if used by my consultant would have meant I was dismissed) and also what is regarded as normal for Anti-ccp levels which says above 20
I was referred by my GP to rheumatology because my anti-ccp was 12. Here they regard anything over 7 as worth a referral. My RF is negative and my CRP is always 1.0.
On examination the rheumatologist was certain I had RD. My DAS score was high. Most joints are inflamed and in particular my knees and my finger tip joints which according to the toolkit aren't seen in RD.
I have a strong family history of the disease and again when I spoke to my consultant this week they were absolutely happy I had the disease which is active and has been very aggressive.
I feel even luckier now that my GP chose to refer me. How confusing!