Trying very hard to get into the Christmas spirit and even if I say so myself I think I deserve an Oscar for my acting abilities around my children – fixed smile at all times!
About two months ago I called my RA nurse to say I had a cough that had lasted more than two weeks, I was told to come off MTX for two weeks and then continue as normal; do I need to come in and get checked over I asked, no you will be fine was the reply. Carried on feeling really poorly (more than normal!) but carried on regardless. Had a couple of days in bed as felt so bad and had really high temperature. So fed up with going to the doctors only to be told I’m fine that I did not bother.
On Friday the 7th my husband called NHS direct to get help as the pain in my bones was unbearable; he kept asking was it the return of RA and I said no this is completely different. NHS direct called an ambulance, at this point I was still saying this was wasting every ones time but was taken into hospital anyway. Within a couple of hours I had been admitted after being told I had pneumonia and pleurisy.
I actually felt very angry at being told that, as the pain I had was the same I had been to the doctors with some months ago and I was told to avoid fatty foods as it might be my gallbladder, so goodness know how long I have actually had pneumonia for.
I was in hospital for four days at which point I made it very clear I was going home regardless, as my children were getting very upset.
Feel completely wiped out and not able to do much at all.
The point I want to make is that sometimes we just need to be a bit pushy and insist that we are taken seriously, A diagnoses over the phone from our RA nurse (because the RA consultant can’t be bothered to speak to you) is not good enough.
As I say an out and out moan!