Does anyone else feel like they are having to wait for what seems like forever to receive a treatment that works and easy ra.
On my last visit to the rheumatologist he said he wanted more ultrasound scans to see where he goes next with my treatment. I am currently taking methrotrexate 25 mg, sulphsalazine, hydrochloriquine. Pregablin, anitriptaline and tramadol for my treatment for ra, osteoarthritis and fibromyalgia.i have been on most of the treatment since august 2012. The sulphasalasine was added in Jan 2013.On my January visit the rheumatologist didn't want to give me a steroid, he wanted to see how I responded to the sulphasalazine. On my April visit he didn't want to give me a steroid as it would dampen things down until I had the scan in two weeks. I'm still waiting and I am in agony I phoned the rheumatology nurses and they couldn't see a referral for a scan. I feel like crying before you know it I will be half way through another year again just getting nowhere infact worse. On the last two visits the rheumatologist spoke about the next step trying biological drugs but there is a certain criteria I have to meet before I can go on this treatment.
Do all rheumatologist have such a lengthy waiting list, when I rung to see about the scan the secretary informed me the clinic was running 7 months behind schedule I. am feeling so frustrated with the whole system.
I also asked my rheumatologist last may to support me with applying for ill health retirement which he was happy to do due to being finished on the grounds of incapability. I'm still waiting for him to send this back to me, when I asked on the last visit he was surprised I hadn't received it he thought his secretary had sent it on to me. I left him another form.!!!
Sorry for rambling on I just don't know how long more I can go on in this pain and feel nobody is listening.
thanks for listening to my moan
take care love Carolineo xx