Hi All fellow Soldiers
Hope you are all having a good day and feeling well....great.
I have been diagnosed now for 9months, Im on all the strong stuff, hydroxy, sulfasalizine, mtx - max dose, plenty of PK's and diclofenic.....with not much sucess. Im going on Anti-TNF next week so holding out for abit of luck there.
My whole world has been turned upside down and im finding it differcult to come to terms with. Since being diagnosed I have been in the hospital pretty much weekly for bloods, injections, reviews, scans etc.... Now since they annouced the tnf - they have signed me out of the clinic and said just to wait and see how it goes. I can always ring them if im worried about anything they said. I now only go for bloods monthly.....as they have been fine.
I dont know how you guys feel...but I feel a litlle bit out on a limb. The nurses have been great and they havent hesitated in uping my meds, but going for my reviews and seeing the nurse was that extra bit of support, a time to unload, ask questions and a shoulder to cry on....on this rollercoaster of RA. I have been shocked at the lack of emotional, caring and financial support I think RA deserves, I do think all this should be on offer and dealt with at your Arthritis clinic. What I have learnt so far is that this diesease is very much misunderstood and underestimated when it strikes.
Does anyone else feel like this...or had similar experience?
ThankGod for forums like this, were atleast we all understand what each other is going through as we have all been through the motions at some point, a place were we can moan, be emotional and be happy and cheery to help each other through.
Thanks Everyone. x