I woke up this morning with swollen hands, ankles, knees, and feet! Got out of bed to get something to eat with my meds, no bread for toast. Grab a yogurt instead, heat some coffee, and hobble back to bed to get meds ready. 14 pills later, the real struggle begins, it's time to get dressed. I have a training session to go to for Girl Scouts. I can't let my daughter down, so I start getting ready to leave my sanctuary.
I get to the training centre, and they hand us notebooks and pens 😬! I explained to the instructor that I have uncontrolled RA and cannot write that much anymore. I ask " Do you have a summation for those that cannot take notes?" She says no. Does anyone know if Girl Scouts has a plan for Girls and leaders with these kinds of disability? If not, any suggestions for creating one? More and more kids are being diagnosed with autoimmune disease, so there is a need for a plan of action.
Thanks in advance for your help,