I'm scared... after multiple rounds of steroid inject... - NRAS

NRAS

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I'm scared... after multiple rounds of steroid injections my doctor is scheduling me for surgery.

Radiogirl profile image
24 Replies

I burst out crying in the doctor's office. So glad hubby was with me. It'll take a week or two to be approved by insurance, but it looks like we're forging ahead with Anterior Cervical Neck Fusion Surgery. Probably a result of a combination of OA and RA.

The nurse suggested I refrain from over researching it online. I get that. People are more prone to post about their horror stories rather than success stories.

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Radiogirl profile image
Radiogirl
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24 Replies
sylvi profile image
sylvi

I am recovering from surgery and i didn't look it up either mind you i knew i was scheduled for surgery,but i only had two days notice of having it. The dr is right.xxxx

Sammicat15 profile image
Sammicat15 in reply tosylvi

Hope your recovery is going well.

sylvi profile image
sylvi in reply toSammicat15

It is thank you the pain was gone in 24hrs,mind you the RA/Fibro is joining the party and letting me know i still have them blighters in my system.xxxx

Sammicat15 profile image
Sammicat15 in reply tosylvi

I hear you. The only pain-free day I've had in the past 20 years was when the hospital gave me morphine to combat a dreadful migraine (I have a migraine condition, as well as RA/fibro) after my last op in 2015.

The idiots hadn't put my Imigran on my ward prescription, and locked all my meds away. Despite begging and pleading, I was given the brush off, left in tears, being told I couldnt possibly have a bad head with anaesthetic in my system. The ward staff didnt take into account that anaesthetic has an adverse on me (I get the DTs and vertigo, then migraine)

I went through 9 hours of additional hell that afternoon/evening until the night staff nurse took pity on me. He took the decision and 5 mins later adminstered the dose. I then had a blissful, but insomniac, night. Was ready to discharge myself at 9am the following morning. I didn't trust the day staff an inch at that point!! The surgeon looked astounded that I was dressed and ready to go home. I'd phoned my OH to make the 160 mile round trip to collect me pdq. It was a relief to leave and sort my own recovery out.

Fingers crossed things go better for the next op in the coming year!

Radiogirl profile image
Radiogirl in reply toSammicat15

That sounds horrific. So sorry you had to endure so much. Are you doing better now? Hugs!

Sammicat15 profile image
Sammicat15 in reply toRadiogirl

Funnily enough I woke before dawn yesterday with a bad head underway, but couldn't reach my triptans at that moment without falling over! My hubby got them a couple of hours later when he woke, and the head was thankfully under control by 11am when I had to go out to meet friends. Thank goodness for chemicals lol...

Radiogirl profile image
Radiogirl in reply tosylvi

That's great! My doctor mentioned that a flare could be a result of the surgery, though. Since I'm new to RD I'm not sure I completely understand why that would be. I was worried about difficulty in healing.

Neonkittie17 profile image
Neonkittie17 in reply tosylvi

Two days notice?!?! Wow Sylvi. However maybe good that you didn't have time to think too much about it. Hope you are soon feeling much improved sweet lady. xxxx

Radiogirl profile image
Radiogirl in reply tosylvi

Hope you are doing well. Do you notice an improvement in your pain yet?

Barrister profile image
Barrister

It is so scary but I know someone who had this surgery and it made such a difference to her. Hope it all goes well for you. Clemmie

sylvi profile image
sylvi in reply toBarrister

It has made an awful lot of difference to me my back surgery,i am not in pain from it anymore.xxxx

Radiogirl profile image
Radiogirl in reply tosylvi

That's great! I'm so happy for you. I pray I'll get some relief, too.

Radiogirl profile image
Radiogirl in reply toBarrister

Thanks. I sure hope so!

Sammicat15 profile image
Sammicat15

Sorry to hear you need surgery. I too have been referred for surgery after 20 years of cortisone injections and being told not to have any more. A different part of the body than you but am still dreading it.

Just tell yourself your life will improve after you've recovered from the surgery and they wouldnt recommend it unless necessary.

Radiogirl profile image
Radiogirl in reply toSammicat15

Do you have a date for your surgery? I hope all goes well. Hugs and blessings!

Sammicat15 profile image
Sammicat15 in reply toRadiogirl

Not yet. Have been told it could well be a good 9 months time. Thank you for your good wishes.

Radiogirl profile image
Radiogirl in reply toSammicat15

Nine months???? Uuugh!

Gnarli profile image
Gnarli

I'm not surprised you cried! I suspect you knew this was coming but news like that will always be a shock. Eyes on the prize, sweetheart. Just keep thinking of all the benefits and don't do the research as your nurse suggested. You don't need to know the intricacies.

Watching the news I've been thinking of you and hope this dreadful weather has passed you by. Hugs

Jan

Radiogirl profile image
Radiogirl in reply toGnarli

Thank you, Jan. You're a sweetie. As far as the weather, I grew up in Houston, but have lived 250 miles north in the Dallas/Ft.Worth area for the last 30 years. I still have lots of friends the in Houston and it breaks my heart to see so much destruction.

Blessings!

Sammicat15 profile image
Sammicat15 in reply toRadiogirl

I hope that your friends are safe after the terrible flooding.

Fra22-57 profile image
Fra22-57

Oh bless you. It's always scary when you not in control of things yourself.I dread hospitals but know staff are very caring and will get you right.

Think of new life ahead

Radiogirl profile image
Radiogirl in reply toFra22-57

Thank you. I sure hope it works. I have a girl friend who had some vocal cord damage following this type of surgery. She's ok now, though, thank goodness.

ITYFIALMCTT profile image
ITYFIALMCTT

Are you having the surgery to alleviate instability in some vertebrae or to relieve compression on some nerves?

And, yes - of course there are horror stories but, as per Barrister , there are people for whom their quality of life has been turned round by this intervention - and I trust that you'll be one of them.

Good Luck!

Radiogirl profile image
Radiogirl in reply toITYFIALMCTT

I think both, but I think the deciding factor was compression on the cord and some edema in bone marrow. The doctor will also grind away some Spurs. It was a surprise because I thought the doctor who had been giving me rounds of cervical (and lumbar) injections had mentioned burning off the tips of the nerves. He sent me back to the surgeon for another look first and he felt the burning wouldn't help long term or at all.

Thanks for your reply and well wishes. Blessings to you.

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