By coincidence the same day I sent my letter I received one from the hospital in response to an urgent referral my GP sent three weeks ago asking for permission to treat me if they weren't going to.
The letter from them effectively says I am not worth treating. That I had no right to go to my GP and demand treatment. That he could give me one steroid injection if he thought it was worth it but and I cannot believe the tone of the letter. "Miss xxx should be made fully aware that by asking for steroids she is putting herself at risk of obesity, osteoporosis, heart disease and other complications and it is not a long term solution".
No other solution has been offered by the way. The letter goes on to state I had failed on four dmards because I said I couldn't take them. That the ultrasound showed no active synovitis so there was no point to them doing anything and I was not being followed up because I had been put back through the central booking system as I was no longer an active patient.
My symptoms have not changed and have got worse. I have not asked for any drugs. The rheumatologist refusing to treatment me now referred me for an assessment of my knees. The physio was so horrified that she called my GP and suggested steroids.
They scanned my hands and feet not my knees and elbows but have stated that as they could not see inflammation on that day in my fingers I cannot have it anywhere else.
These are the same people who last September put me straight on triple therapy because these same symptoms were "classic for RA and I needed to be treated straight away as I must be in so much pain!!!!!!
I'm scared our PALs team have no teeth here and I will just be blacklisted completely