Saw my GP today. He is furious and dictated a letter to the rheumy whilst I was there.
Diagnosed Sept 2016 with RA, blood positive also. Couldn't tolerate dmards and suddenly rediagnised with fibromyalgia instead by my rheumatologist though the consultant who oversaw the ultrasound on my hands insisted though they could not see inflammation on that day I definitely had RA.
Pain though is in my knees and elbows to the point I could chop them off. I begged for help. I was supposed to be followed up and put back on ultrasound list for my knees. Nothing happened. Instead rheumy referred me to physiotherapist as must be mechanical...complete volte face from what they were saying before. Both an independent physio and the NHS physio have now said symptoms wholly consistent with RA. NHS physio sent email to rheumy saying please see this lady she is unwell and I can do nothing as her symptoms are RA related. I heard nothing from the hospital. Two weeks ago an urgent referral from the GP was made and faxed over. I've heard nothing, neither has the GP. My GP says my symptoms are wholly consistent with RA and not with fibromyalgia.
I have been trying to carry on working because I had no option as rheumy started saying nothing wrong. Upshot....massive flare and now Shingles.
Everyone is agreed this is what you get if you are a problem patient. If I could have tolerated methotrexate no one would be questioning a thing...