Psoriatic Arthritis

[Jan101050]

I have been diagnose with psoriatic arthritis many years ago. I have been on various biological medication and at present on Methotrxate and a new drug Cosentyx. I was wondering if anyone else on this site has been diagnosed with the same diagnosis. I would like to exchange ideas on how they manage this arthritis. As far as I understand it follows the same path as R.A.

Thank you.

[Someonesmother]

I was originally diagnosed with sero neg RA about 5 years ago but in Dec they decided to swap me to PsA and I have started on cosetnyx a few months ago, last dose delayed for nearly a month due to allergic reaction to mould which nearly killed me. I was told it will take up to 9 months to work so no big changes as yet. I do not have any skin involvement but hands, feet, back and extreme exhaustion are the pits.

[Jan101050 in reply to Someonesmother]

Please see my reply to Sanbanan . Seems as though we are on the same path ! Let me know how you get on.

Best wishes

[Sanbanan]

Hi Jan

I was diagnosed with PsA 3 years ago.

So far I have failed on Methotrexate, Leflunomide, Cimzia, Benepali and Stelara.

I am currently on Sulphasalazine and Cosentyx (for 2 months).

I have virtually have no skin involvement but it affects my hands, feet & back the most.

I was at Rhuematology clinic last week and ultrasound scans looks as though the Cosentyx may be starting to dampen the inflammation although I am not yet noticing this in pain relief.

I am hoping I will notice a difference soon.

Best wishes.

[Jan101050 in reply to Sanbanan]

Hi

Thanks for reply. I have been on Sulphasalazine, embrel which had a good result for many years but eventually stopped working,Humira, Stelara Cimzia ,back on Methotrxate and now started Cosentyx. I have just finished the loading dose and a bit confused about the doze. I am sure my consultant said 300 mg but when the nurse came to do the first doze she said it was stated on my prescription 150 mg. checked on some sites and it said it could be either . Seeing my consultant in two weeks. Still have aching in joints , extremely tired , inflammation starting in fingers and toes. I also have weight gain especially around the stomach area . My psoriasis was very mild although both my children have suffered with this. Will wait and see what happens on next hospital visit.

Keep in touch as I am interested to hear how you get on.

Best wishes

[Sanbanan]

I am on 300mgs.

I have found that I also have weight gain but I think the injections may have given me an increased appetite so I may have to reign that in and keep a check on it.

Yes would be good to know how you get on too.

I had to stop injections at 3rd loading dose due to a chest infection and have had a few tummy upsets but other than that, nothing major.

I am forever hopeful of finding something that will work as it's so demoralising when there's no real improvement.

Take care x