Ra sufferer: I would like to know if anyone has just... - NRAS

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Ra sufferer

Rocky07 profile image
9 Replies

I would like to know if anyone has just been on sulpalasine only was it beneficial and if you had side effects

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Rocky07 profile image
Rocky07
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9 Replies
mary53 profile image
mary53

Yes been on sulfalazine for about a year...initially I didn't have enteric coated and got stomach pain. Once that was changed no noticeable side effects. Edge of pain taken off so probably not as bad as it has been....as most things not a magic cure

Cdr1967 profile image
Cdr1967

Hi I was on those for a year no side effects but they wasn't the right medication for me I'm just starting methotrexate

Paula-C profile image
Paula-C

When I was first diagnosed I took it. Started on four tablets a day. After about a year it was increased to six. After two years on it mtx was added. It did work initially but with ra being a progressive illness more meds were needed. I had no side effects. Taking mtx and enbrel now and have been in remmision since early 2013. xx

Rocky07 profile image
Rocky07 in reply to Paula-C

congratulations being in remission hope it stays that way

nomoreheels profile image
nomoreheels

I tried SSZ but unfortunately it wasn't for me. Have you been offerered it? It is one of the older DMARDs, there are other newer ones your Rheumy can offer you.

If you don't mind me suggesting Rocky, it would help us if you entitle your posts relevant to the question you're asking rather than RA Sufferer each time. It may help you to receive more replies as well, for example if in this instance you wrote something like "Sulfasalazine experiences please". Thanks.

Rocky07 profile image
Rocky07 in reply to nomoreheels

Thank you for your advice

Dreamer85 profile image
Dreamer85

When i was first diagnosed i took sulfasalazine for 4 years it worked really well with no side effects until my arthritis progressed due to having a baby.

KatyDid profile image
KatyDid

I had a very similar experience to Dreamer85 above. I took sulphasalazine for about 2 years and it was great, but it stopped working after I gave birth. The only real side effect was Sjorens (spelling?) Syndrome in my finger tips - they would go white and painful if I got cold. This stopped when I stopped taking it. Hope it works for you if you take it.

Radiogirl profile image
Radiogirl

I was diagnosed only 3 months ago and have been taking Sulphasalazine 500 mg twice a day. I haven't really noticed any improvement and my Vectra DA scores have risen three times so I am now in the "high disease activity" range. I have an appt with my rheumy in a couple of weeks and I am guessing he will either be adding/modifying my Rxs. I do take Norco 10/325 and my liver is showing it. I am so afraid of so many of the side effects you hear about the other DMARDs and biologics. Guess we'll see what happens. Hope to hear you will be experiencing some good results soon, Ra Sufferer.

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