Ra sufferer

[Rocky07]

In ref to my previous post a lot of consultations can be done via Skype then if the doctor feels that he or she needs to see you they will advise you to come in Skype consults happens a lot now a script will not necessarily will be just given. it needs to be justified

[AgedCrone]

Make sure you find out what the fee will be Rocky, before you commit to anything on Skype. Very few medical consultations on line are free!

Good Luck.

[medway-lady in reply to AgedCrone]

How will they do your blood pressure and blood tests? I'm sorry, but do question the wisdom of this. But then how do you know they are a real doctor and it's not a quack with a nice line in Chinese fake products, Sorry to be sceptical but the HMRC does raid places with lots of fake medications in warehouses. What if you swallow something that lands you in real trouble possibly in a local A&E with heart problems. These things do happen. That said best of luck and don't give them credit card details on line.

[Simba1992]

I consulted a clinic recommended by LDN Trust. I needed to fill out information about my current health situation with a diagnosis of RA from a rheumathologyst. For me it was enough and I needed no separate consultation. The fee for the skype or telefone consultation was very moderate. You get written instructions how to proceed. It's good to get you doc on board but in fact it is not necessary because LDN is not toxic in any way and can be combined with RA meds.

[AgedCrone in reply to Simba1992]

But whoever "they" are have your credit card details don't they?

[medway-lady]

It may not react with RA meds I don't know but it might with others, and just say it does !

I looked this up and am puzzled as it said it treats Hashimoto's which I have had for some 20 years or more which is easily and cheaply treated. I understand it once the antibodies have destroyed the gland it's just dead, you just can't get it back; only treat the condition.

As not taking thyroxine will lead to coma and death I'm not that sure that some of the wonderful claims are justified at all.

It's not licensed for use in the UK, and had no long term controlled trials so just how does anyone know if its safe in the long term yet? It might well be a new wonder drug and I hope it is, but so many so called wonder drugs have done huge damage to people in the past.

[Simba1992 in reply to medway-lady]

I don't think it's a wonder drug but as Ray Peat put it gives you a bit rest and supports for the healing process by calming down the reaction in the CNS caused by inflammation in your body, thus also reducing symptoms. If you have thyroid dysfunction and you are on thyroid supplementation you often see results with very low doses of LDN. You always start with a very low dose and stop when you see possitive reaction. The sweet point is very individual. You don't usually go higher than 3-4,5mg.

The drug in much higher dose (50mg) has been used for decades with no known toxic effects. I should really be much more worried about the longterm effects of RA meds that are proven to be toxic and where there is way too little research on longterm effects.

[medway-lady in reply to Simba1992]

All medications and most herbal remedies are toxic in some way, to some people. As are some foods. Asprin can kill as can paracetamol, all are toxic ie poisonous in the wrong dose. It's about risk are you seriously suggesting that it's news that RA ones are worse.

Of course, there are side effects but that is not down to toxicity but just might be metabolic susceptibility, thus it is that one person gets a side effect whilst another gets a different one. I just hope people, (some times vulnerable ) do not part with large sums of money for a medication that is not approved here in the UK. I hope the NRAS gives its viewpoint to help give people an informed and constructive impartial view on this substance.

[helixhelix in reply to medway-lady]

It is approved in the U.K. by NICE/NHS, but in much larger doses for people with alcohol and opiod dependency problems. So my logic tells me that if it's ok in higher doses for people who probably have less than perfect livers & kidneys then in small doses you wouldn't run much of a risk.

To me, all of these things are a personal choice. And particularly for inflammatory arthritis as it so hugely variable. I wouldn't try it myself, but then I respond well to the conventional drugs without problems so I have no need. If I was still in the state I was when diagnosed, and these drugs weren't helping, then maybe....who knows?

[Simba1992 in reply to medway-lady]

Nothing so black and white. Often very difficult to know what theobjective truth of meds is. Here something that has helped me when putting together my treatment protocol.

raypeat.com/articles/aging/...

[Eiram50 in reply to Simba1992]

If so safe, why isn't it approved for use in the U.K.?

[helixhelix in reply to Eiram50]

Hydroxychloroquine was developed as an anti-malarial drug. It took ages before it was accepted for use in RA. It may well be the same eventually with LDN, and accepted that it can be used for alcoholics and RA. Ironic really since I guess many of us don't drink, or very little!

[Eiram50 in reply to helixhelix]

Indeed!

I agree, this may be the case but it also may not and from a personal point of view, if be very reluctant to be prescribed anything that wasn't approved and anything prescribed via the internet/ Skype; but that's just me.

Marie

[Eiram50 in reply to helixhelix]

I want to clarify - wasn't approved for RA