Humira: I had my first Humira injection on Monday. I... - NRAS

NRAS

32,112 members39,182 posts

Humira

Bailybiscuit profile image

I had my first Humira injection on Monday. I have read some people notice a difference in a couple of days. The nurse who came out said she would expect me to notice a difference by the next time she came which is only two weeks. Has anyone had it take longer to work? I am getting worried as nothing only steroids has worked for me, in fact my knees have got worse since the injection. When they say a drug could take up to 6 months to work you still have hope, but two weeks isn't long.

13 Replies

I've heard it works anywhere from 2 days to 5 months! I started it at the beginning of June and am just now not feeling permanently ill. The swelling is less but its had no impact on my pain levels as yet.

Bailybiscuit profile image
Bailybiscuit in reply to Jacey15

Oh dear. I had hoped it would work fast, especially after what the nurse said. If it hasn't helped with your pain levels yet I hope it starts working for you soon.

It may not be the one that works for you. I was unable to manage the side effects. It can take months to work. I hope it helps soon. The constant pain can be so exhausting. Are you also taking a DMARD's.

Bailybiscuit profile image
Bailybiscuit in reply to Damaged

I take Methotrexate but took it before and that didn't work either. I took Hydroxychloroquine and Iv'e taken Benepali, neither of those worked either. I'm afraid of running out of things to try.

Damaged profile image
Damaged in reply to Bailybiscuit

I am currently going to take a second round of Rituxan but this time I will stay on MTX as my Rheumy says they work better together.

Bailybiscuit profile image
Bailybiscuit in reply to Damaged

I haven't taken two together before, Methotrexate was on its own before. Good luck.

Anyone on mtx needs to get a chest xray at least once a year.

Damaged profile image
Damaged in reply to Bailybiscuit

It was a disaster.The nurse rushed the infusion. She did it in two hours instead of five and one half. I spoke to my doctor and the next one due Aug 8th will not be rushed but that has not done anything to calm my anxiety. I just do not know what to do.

Bailybiscuit profile image
Bailybiscuit in reply to Damaged

Make sure they know not to rush the next one, let them know how unhappy you are about it.

Hi Ive been injecting Humira once every two weeks since Feb - had a couple of set backs as I developed a chest infection and had to take antibiotics so couldnt inject. But started again and been ok only had no relief from aches & pains and still suffer from fatigue. So its not started working for me yet but not giving up hope. I see Rheumy nurse nxt month for a review so I hope there will be some improvement by then - if not I think they may add something or change it. I take Tramadol & Paracetamol to help.

I hope it works for you. I take co codamol but it doesn't do a lot foe the pain.

It took six months to work for me....was just about to give up!! Was great for a while, but eventually, due to a break in taking it ( operation) it stopped working. Hope it's the one for you!! M xx

So there's still hope at 6 months. I wonder why it takes so long with some people and not others? I hope you found something else that works for you.

You may also like...