So after emailing the consultant (something you aren't allowed to do) I actually got to speak to him. The MRI results are back. I have fluid in my knees but no inflammation. This is the same as my hands. Excruciating pain, fluid in the joints but no inflammation. My ankles have now swollen up, my right ankle is huge. Rheumatoid physio confirms its fluid.
Rheumatoid physio says it's weird. I have all the symptoms of RA and I've clearly got fluid in my joints but no inflammation can be seen. Consultant at my request is repeating the anti-ccp as it had almost returned to normal last time - and yet I have so much pain I don't know where to put myself and limited movement in my joints.
The consultant says he can't remove the RA diagnosis (I asked as it's a total no no for the police) he says he thinks I've definitely got it but it's in its early stages. He says he's seen patients like me, who six months later come back with all their joints huge swollen because the disease has been stuttering along and then suddenly takes off with a bang. He said he has only ever seen one patient who did not have fluid in their joints and had RA. The trouble is the drugs are all geared to reducing inflammation and if you haven't got it then they don't work.
He is also wondering whether I had a an episode of inflammatory arthritis that left me with these problems. He says the pain that this can cause can be worse than when the disease is evident.
He is going to think about a 12 week treatment plan trying different drugs as he accepts I am becoming seriously unwell and he is now worried about this. He wonders whether the flu like symptoms and repeated fevers are RA or due to being in so much constant pain.
So the upshot is all my joints hurt and are tender, I've got restricted movement and am generally unwell but nobody is sure why. I don't have the symptoms of fibromyalgia apparently and inflammation was evidenced on several clinic visits so they aren't doubting that something isn't right.
Talk about having to fight and fight.