So I have Uveitis with a non specified auto immune disease. They have literally tested for everything that it can possibly he and even some things that it probably shouldn't be. Alas everything is showing absolutely nothing. Other than the flares in my eyes that literally could blind me. I've been on acthar injections (specifically for my Uveitis) and it's helped but my flares have still been popping up and in the last few months very very severe. So my Rheumatologist decided the methotrexate is best. I'm starting at an intermediate injectable dose. He didn't want to start very low as my flares are getting to the point where I could just wake up blinds due to extremely high pressures (they said that clinic has never seen pressures so high) and saying that i was very lucky/blessed to still have my vision.
So starting at a decent dose not so low is a better option. I start tomorrow and I'm not gunna lie, I'm super nervous. I want to be smartly prepared but also not scare myself stupid. I really don't care about losing my hair, if I do I'll cut it all off. I'm not really worried about losing my voice, tho that would be more upsetting than my hair. I'm not terribly worried about gaining or losing weight, tho the losing wouldn't be horrible ;-).
What I am nervous about is the unknown, if I will get sick, if I'll have the energy to coach soccer for my kids or run my son around to his "too numerous" to count medical appointments. And the. Lightly how I will take action against all the afore mentioned worries/concerns.
I'm looking forward to having a network of people that can give me advice and just support.