Back in the bike : Well as promised a little update... - NRAS

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Back in the bike

Fifi2 profile image
Fifi2
β€’39 Replies

Well as promised a little update

Today I cycled 13 miles and I'm feeling exhausted but good

Considering my bike was put into hibernation last year due to my RA running riot and not being able to lift a cup of tea some days I'm feeling quite proud of myself 😊

For all who are suffering out there .....hang in there with the right meds you can get back to some normality .

Stay positive guys and girls :-)

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Fifi2 profile image
Fifi2
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39 Replies
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allanah profile image
allanah

Fantastic news. That's brilliant xx

Fifi2 profile image
Fifi2β€’ in reply toallanah

Thank you 😊

Nettac profile image
Nettac

Brilliant! Well done you.

I have days like that. Last year I wanted to curl up and sleep for ever πŸ˜„

Fifi2 profile image
Fifi2β€’ in reply toNettac

yep still have my days when I do nothing !! I love my Jim jams and tv days :-)

It's good to rest up !

lynz1983 profile image
lynz1983

brilliant well done you and if you feel good that's all that matters at the end of the day.

well done again 13 miles is alot to do

Fifi2 profile image
Fifi2β€’ in reply tolynz1983

Thank you .

In my previous life I was cycling 30 miles but hey it's a start :-)

lynz1983 profile image
lynz1983β€’ in reply toFifi2

just be careful you don't over do it you don't want to hurt yourself I remind myself slow and steady you don't want to take one step forward and two steps back. Well done again its alot to do when you have had time off xx

Crusee profile image
Crusee

Thank you for giving me some hope Fifi2

Until approx 3 yrs ago I was fit and healthy.Cycled approx 100 miles a week etc.Then diagnosed with RA and within a few months things got bad very quickly.

Cant walk across a room most days.and have had to stop working.Just hoping one day things may change and give me,my life back.I still have my bike in the shed and looking to bring it out again.

At least I know its possible now,

Good luck to you and well done in your progress.

Take care.

Crusee

XX

Fifi2 profile image
Fifi2β€’ in reply toCrusee

Never say never !!

Last year I was seriously not good .couldnt drive didn't want to go out and wasn't working .My life became very small

My bubble may burst but for now I'm enjoying almost being the old me again

It can be done !! Don't give up !!

Xxxx

Fiona

Crusee profile image
Cruseeβ€’ in reply toFifi2

Thank you.

Crusee

XX

sylvi profile image
sylvi

Well done you i am proud of what you have achieved.xxxx

Fifi2 profile image
Fifi2β€’ in reply tosylvi

Thank you .....it's been a long time coming !

Hope it continues ....never know with this damm RA

But while it lasts I'm riding the crest of the wave :-))

Beaches2 profile image
Beaches2

Well done you. I know the feeling. When things are at their worst you imagine you will never be able to do these things again. Hope you enjoy lots of great bike rides now the weather is improving.

Fifi2 profile image
Fifi2β€’ in reply toBeaches2

Thank you I hope so too !

Caza profile image
Caza

That's brilliant, well done you. πŸ‘

Fifi2 profile image
Fifi2β€’ in reply toCaza

Thank you

Such a positive post. Thanks for sharing.

Fifi2 profile image
Fifi2β€’ in reply to

I'm getting there .....slow but sure :-)

Matalow profile image
Matalow

Well done Fifi. Great to get back a bit of normality.

I'm improving as well I swam 4 times last week( not very far though)and walked my dog , yes I finally got one ,he's a rescue dog a boarder collie called Jack. We only got him last Friday but he seems to be settled already.I will post a photo when I figure out how to do it from my iPad .

Regards Mike

Fifi2 profile image
Fifi2β€’ in reply toMatalow

Well done you !!

Yes swimming is next on my list .its very good for you .

I have to keep active otherwise I'll seize up !!

I too have a little dog 🐢 King Charles Cavalier.shes adorable

Take care

Fiona

Gigi71 profile image
Gigi71

Well done and thanks for sharing your positive post as well, gives everyone hope. Onwards and upwards. X

Fifi2 profile image
Fifi2β€’ in reply toGigi71

Indeed .there is always hope !

ruth_p profile image
ruth_p

Well done!

Tillie20 profile image
Tillie20

Well done it's great when you do something you like that makes you feel good x

Fifi2 profile image
Fifi2β€’ in reply toTillie20

Thank you

ITYFIALMCTT profile image
ITYFIALMCTT

What a lovely day to have been out and about cycling!

Fifi2 profile image
Fifi2β€’ in reply toITYFIALMCTT

It was beautiful weather . Cycled along the grand union canal .stopped a few times along the way for a light refreshment.

Lovely little pubs what better way to spend a Sunday

Awesome news Fifi! Good on you and keep it up.. We're very happy for you...

Fifi2 profile image
Fifi2β€’ in reply to

Thank you :-)

Hessie5 profile image
Hessie5

Great news - do you mind sharing what meds you are on?

Fifi2 profile image
Fifi2β€’ in reply toHessie5

Of course . After what seem so like a lifetime( 2 years ) trying to get meds right I have found one that works .

Rituximab infusion and leflunomide

It's worked for me and I'm almost back to my old self

Have also returned to my job which I love ❀️.....cabin crew worldwide .

It can be done !!

Hessie5 profile image
Hessie5β€’ in reply toFifi2

Thank you so much Fifi, nice to hear reassuring stories. Saturday I was looking to pack in all my meds as the pain in my feet was awful. I was out for the day and unable to walk 😬However, today is a better day - just a moment of sheer angst and frustration.

Lovely to know you are back at work - brings hope. All the best x

Thankyou for your positive words! I read them out to my hubby to give him a boost. You must be so chuffed not just the awesome biking but getting your life back! πŸ˜ƒ

Fifi2 profile image
Fifi2β€’ in reply to

I am so so grateful .i was in a very dark place last year .To be honest I really thought I would never get back to being able to do normal things like driving mowing the lawn and certainly never cycling again !

I'm going to slowly build up the miles .

Have to admit I was exhausted ....slept for an hour after but had a long soak in the bath and early night as I was working the next day flying to Saudi Arabia .

I have to push myself ....not too much but still a little push otherwise I could easily fall into the "I can't do that mode "

Don't give up ....it will happen

Warcho profile image
Warcho

Well done.good for you

Fifi2 profile image
Fifi2β€’ in reply toWarcho

Thank you

Dotty55 profile image
Dotty55

Dotty55

Well done Fifi you must be very proud of yourself and your hubby must be proud of you to I hope I get some of my life back can't remember what it feels like to be normal I am very proud of you and it gives us all hope good on ya lots of hugs

Dotty 55

Fifi2 profile image
Fifi2β€’ in reply toDotty55

Thanks Dotty

Yes I am proud of me when I sit and think about it .give myself a pat on the back as no hubby :-)

That was also haunting me last year .......being on my own, although I do have my mum and sister who have been a tremendous support .

I had to get back to some normality to keep me sane otherwise it would have been overwhelmingly life changing

I would have to have had given up work and sell my house 🏑 Major change

But here I am muddling through :-)

Dotty55 profile image
Dotty55

Dotty55

Nice to hear you are getting back to some normality I have just spent 3 hours cleaning my kitchen I am in agony now can hardly move I brought a new rug for my kitchen only two of us makes you wonder where all the muck comes from pulled everything out I feel better that I have done it In spite of the pain will really catch up,on me tomorrow my hands hurt now can hardly straighten them i wish the pain would go away

Dotty

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