So an update on the clinic visit. I suspect that the registrar may have had a very big talking to from the head of rheumatology, who is my rheumy. So I have a new diagnosis, psoriatic arthritis possibly spondyloarthritis. I showed her the MRI of my right foot and said as you can see I have bursistis all over the place, along with the other things going on, which would explain the pain in my feet, obviously not from fibro, it is real! So after nearly a year and a bit I am allowed to take a short course of steroids while I wait for the TFN script to come through instead of just toughing this out like I have been for over a year,
Thank you everyone for your support, it makes me feel like I am not going mad when others have experienced the frustration I have. People who haven't been through this sort of thing have no idea just how frustrating and soul destroying it can be battling to get listened to. So keep your invisible armor on and Cheers. If I drank I would have a glass of a wonderful cab sav!