First Biological Clinic: Hi Lovely People I have my... - NRAS

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First Biological Clinic

Mistydawn profile image
Mistydawn
•11 Replies

Hi Lovely People

I have my first biologics clinic shortly and wondered what I should expect. I have been on Abatacept for 3 months.

Thank you

😊x

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Mistydawn profile image
Mistydawn
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11 Replies
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Moomin8 profile image
Moomin8

I missed mine and panic ensued! From what I understand, it's to touch base with how it's all going and to continue with your funding. Luckily for me, I was able to nip in quickly so that I didn't have a break in my biologic injection - phew!😟

keeta profile image
keeta

Hi been to my last app .they are putting me on etanercept in 3 weeks couldn.t give me a steroid injection even though i.m in so much pain .cos they have to see the same inflamation wen they see me next .it is a biologic.and i will still take sfz had blood tests for everything .and chest exray .When i read the leaflet that came with it i was so worried .when i looked online i was frantic .anyone else on it .think its also called embrel..x kathy

popsmith1874 profile image
popsmith1874• in reply tokeeta

Hi I'm on Benepali it's the same as enthrachept and Embrel and I take 20mgs along with it, it has made a huge difference to my RA, been on it since last July

popsmith1874 profile image
popsmith1874• in reply topopsmith1874

Sorry meant 20mgs off mtx with it , blooming hands

keeta profile image
keeta• in reply topopsmith1874

Thank you .have heard some people pile on the pounds .have you heard this .x

nomoreheels profile image
nomoreheels

I don't know I'm afraid U but made up that you've got there. Hope you're doing well & all goes to plan at the clinic. x

Mistydawn profile image
Mistydawn• in reply tonomoreheels

Thank you P. Hope all is good with you. Private message me if you get a minute xx

nomoreheels profile image
nomoreheels• in reply toMistydawn

Will do. x

Beaches2 profile image
Beaches2

Hi

Since I started on biologics I only have appts at the biologic clinic. Mine is run by the rheumy nurse. It's just like an ordinary clinic appt to review how things are going. I think I had 3 monthly appts at first when things were still not settled, now it's every 6 months. The nurse asks the usual questions to see how you are and will check for any troublesome joints and then off you go.

How are you doing on abatacept? It took a while to work for me, ( over 3 months) but now it's working really well.

Mistydawn profile image
Mistydawn• in reply toBeaches2

Thank you Beaches2. I am relieved to hear it took longer than 3 months for it to take affect as Abatacept has made a huge difference to me but I am not completely pain free almost 3 months on. My joints and wrists have gotten a little worse over the last week or so to the point it's affecting my sleep again. Hopefully, this is is just a blip.

Glad it's working for you now x

Beaches2 profile image
Beaches2• in reply toMistydawn

Well that sounds promising to me. Yes it was a slow burner, even needed a steroid jab a few weeks after starting it as I was still bad. Things improved over 3-8 months.....it certainly wasn't one of those you hear of where people feel better after just one injection! I think being able to move and exercise helped loads, and of course being able to sleep without that awful pain. Hope things continue to improve for you x

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