Phone call from rheumy to continue mtx.: Dang!! Dang... - NRAS

NRAS

33,880 members42,040 posts

Phone call from rheumy to continue mtx.

14 Replies

Dang!! Dang!! So.... I happily jumped out of my chair to answer my phone. It was my rheumatologist. He has advised me to continue my mtx, at a lower dose of 12.5 mg. He says it is too soon for me to just stop mtx because I am feeling better. He thinks that the fixed dental work has calmed my RA down but not got rid of it. He can not guarantee my RA is gone and he doesn't want all the mtx to leave my system for fear of a flare. But he will give me a full checkup on the 15th. Oh well, time to give myself the needle

14 Replies
Eiram50 profile image
Eiram50

Don't be despondent sue, he is probably right to be cautious . Chin up and best wishes.

Marie

in reply to Eiram50

That's what I like about my rheumatologist, he is cautious and he phones me to see how I'm doing. Such a nice man.

"one day at a time Suzanne" is his new saying :)

Eiram50 profile image
Eiram50 in reply to

Sound like a good one !

Best of luck with things .

Marie

in reply to

Lucky You, you definitely have a good rheumatologist. 👍 I used to have a great Rheumatologist but unfortunately I moved regions and the service is poor ☹️.

Nickijk73 profile image
Nickijk73 in reply to

Sounds like one in a million - definitely a rarity over here nowadays with the state of the NHS. No matter how much they would love to have that type of relationship with some of their patients,there just aren't enough hours in the day for most of them!!

Here's to you staying relatively drugfree for as long as possible,and getting back to a sense of normality as soon as you can xx

Cathy777 profile image
Cathy777

Yes don't rush anything yet. Take it slow and sure.

nomoreheels profile image
nomoreheels

I know it's disappointing Sue but he's sounds as though he's erring on the side of caution, he's right of course. There's one positive, reduced dose & you've another meet soon, you can talk things through then. x

in reply to nomoreheels

Thanks Nomoreheels. Yes it's disappointing, but on a positive note, I am doing better than I was.

As you Brits say, "Chin up" .

nomoreheels profile image
nomoreheels in reply to

Indeed, that's another positive, you're not remaining on it because things are getting worse! x

helixhelix profile image
helixhelix

Man after my own heart.... sounds sensible to me. Think of it perhaps as injecting the final nails in your RA's coffin to make sure it's lifeless?

AgedCrone profile image
AgedCrone

If you are taking Mtx with no nasty side effects i'dvlisten to your rheumy!

Just remember what a flare is Like!

Slowly, slowly & you'll get there....Good Luck!

AC

MickeyJoints profile image
MickeyJoints

Hi Suzanne,

Hasten slowly! That your symptoms are reducing is fantastic - really.

While complete recovery would be great, even a residual level of pain would be good for me. Just to remind me of what's gone and to help remember to take care of the damaged joints.

I'd think the pathways of the disease will still be there and with a history, ready to rtip back into action. I think a low dose of MTX is prudent.

You future must look a lot brighter now.

Having said that - I hope it goes completely! Best wishes for you.

MJ

Wooohooo!!! Awesome news Sue - That is a great direction to go!

Gigi71 profile image
Gigi71

So pleased to hear you are still doing well Sue, long may it continue. X

You may also like...