Ra sufferer

[Rocky07]

I would like to peoples experience with sulpasalazine and is it tolerable

[popsmith1874]

Hi I was on it for a year and it didn't stop my Ra so went on to mtx 20mgs added hydroxocloroquine no good so now on Biologics (Benepali) along with mtx 20mgs

[helixhelix]

Been on it for 6 years now with no problems (apart from orange pee). For the first 3 months or so I had a very excitable stomach, but that settled down and no side effects since.

[beeckey]

Sorry but did nothing for RA but made me feel sick all the time and i lost a lot of weight so was taken off it but we are all different and you might have more luck than me x

[Hidden]

Hi, I am afraid I had an allergic reaction to it. Hope you have more luck.

[Eiram50]

Hi . I'm afraid after eight months in it, it had no effect whatsoever - no benefits, no side effects , nothing.

Now going into my 3rd biologic alongside 20 MHz Mtx - nothing is slowing the disease and resulting damage down but at least this combination ( alongside the usual culprits) is definitely dampening down the swelling and that does help.

Take care

[Em13]

I have been on it since September. Can't say whether it is doing anything or not because I was diagnosed before the usual RA symptoms set in.

According to my rheumatologist, methotrexate is better tolerated by more people. Saying that though, I haven't had too many issues with SSZ. For the first three months, I used to throw up 2-3 days a week, but my body seems to have got used to it and I have been Ok for the last month. Blood tests haven't shown anything alarming.

I'd been on hydroxychloroquine since January and both drugs caused me to lose weight, HCQ worryingly so, and SSZ more by killing my appetite.

[nomoreheels]

Sulfasalazine works for many otherwise it wouldn't be prescribed I suppose but unfortunately I had to come off it it but not without a fight! I had nausea which I took prochlorperazine so that was sorted but the longer I took it the lower my mood became. I can't honestly say I became depressed but it was significant so it bothered me that it might turn towards it. I reduced the dose twice, eventually to just 500mg but I still had problems so it was stopped. I'm on methotrexate & leflunomide plus add ons now.

I hope it works well for you & try to focus on it working & if you'll have side effects, you may not have any hopefully. 🙂

[Scottishlad]

Worked fine for me for a few years apart from the yellow pee and sweat. You also need to watch out for increased sensitivity to the sun. Use very high factor sunscreen until you learn how you are affected.

Go in with an open mind be aware of side effects but don't obsess about them.

[HJ57]

I've been on it since October and my inflammation has definitely reduced. I'm also on methotrexate and hydroxychloroquine, but the inflammation was coming back. I got a bit of a wobbly stomach to start with, but I take it with food and it's not too bad now. Better than the methotrexate, that's for sure