Ra sufferer

[Rocky07]

When I get home from rehab I am going to look for a Dr that prescribes low dose naltrexone but what responses have people here who are on or tried humirs

[munchybunch]

I have been taking in for a month and have noticed a huge improvement in my mood. I'm only pre ra really as I don't have any symptoms but I thought I d try Ldn to try and get inflammation down. I feel completely different. 10 yrs younger and full of vitality!

[Hidden in reply to munchybunch]

Hi munchybunch. What is pre ra ? I've never heard of that before.

[munchybunch in reply to Hidden]

sorry that should be pre rheum athoid arthiritis

[cheshcat in reply to munchybunch]

How do you know your pre Rheumatoid arthritis? Just curious.

[Lucy11 in reply to cheshcat]

It's not officially called pre RA. Anti CCP can show up in the blood many years before the onset of RA. The tricky part is that not all people who test highly positive go on to develop full blown RA, however, many do so it is indeed customary that keep a close eye on you.

Researchers are now trying to find a way to stop RA from breaking out before it starts but of course you see the problem here. It's very hard to be given an anti CCP test without having symptoms.

Sometimes it's hard to get the test with symptoms! Where I live most GP's will give a RF test and CRP before they send you to a Rheumatologist. I am one who doesn't have a positive RF or raised inflammatory markers and was dismissed and not referred to a Rheumatologist for over a year. All of this is changing and I do hope that everyone gets on board with teaching older GP's the need to test for the more specific anti CCP that can appear years before RF and/or the onset of RA

I believe that they will get to a point of pre-treatment and there are clinical trials going on now to see if giving folks one off Biologics will stop RA from starting. I just want to know how they get to the point of giving someone an anti CCP test with no symptoms.

[munchybunch in reply to Lucy11]

Hi lucy do yo know of any specific studies that have been done giving people like me biologics to kill it before it starts? Thanks

[munchybunch in reply to cheshcat]

The blood tests are high eg ccp and rheumatoid factor but I have no symptoms except for a sore finger. They just aren't sure what to do now. Whether to treat me or sit and wait!

[cheshcat in reply to munchybunch]

I'm not sure a month is long enough to know past a placebo effect?

[munchybunch]

I m totally sure as not only I ve noticed but today my son noticed and asked if I d been taking anti depressants! So Im pretty convinced. Id had a super tough time recently with my husband being diagnosed with Parkinsons and then my best friend died of cancer. I was in a terrible way and couldnt stop crying etc. Now I just feel normal again! weird!

[Hidden in reply to munchybunch]

Oh I'm so sorry, you have a lot on your plate. I too am crying for you.

Sending you a big hug from accross the pond.

Take care & I wish you well

Sue

[cheshcat in reply to munchybunch]

That's wonderful!! Did they tell you how long it took to notice the effect. Just really curious. I'm so sorry about your husband.

[munchybunch in reply to cheshcat]

They all noticed a change in me within a month.