Ra sufferer

[Rocky07]

I ha r just heard a lot about low dose naltrexone with little side effects and very promising results it is worth looking into

[Eiram50]

Isn't this drug used to help manage alcohol dependency?

[Rocky07 in reply to Eiram50]

Yes it is used in high doses. For people addicted to certain things but if you go to utube type in low dose naltrexone forrheumatoid arthritis you will not. only see where it has benefited people with ra but ms andsome cancers nnot many doctors talk about i. but I wwill definitely talking ti my doctor when I see him of course you need to do your own research

[Hidden in reply to Rocky07]

Yeah - Unfortunately they don't talk about any of the alternative options unless you force them, and some will even give you up as a patient instead of talking about them..

[Simba1992 in reply to Rocky07]

The good thing is that you know its a safe med without toxic side effects and you can always turn to a LDN perscribing doctor ( There are around 500 in UK) to get a px. Ldn Trust has a list of these doctors, even though your own GP doesn't want to. You can just inform him of your decision. Usually the GPs are quite interested to see how it works once you start taking it.

[Multijo]

Is it a biologic? I haven't heard of it before I will look into it. Thank you.

[Rocky07 in reply to Multijo]

It is not biological and I believe you dont have to try doing medications firs it has to be made at a compound pharmacy and I bbelieve it is cheap

[Simba1992 in reply to Multijo]

You find all information you need here: wwwldnresearchtrust.org

[Rocky07]

I hope you can understand my post sometimes I miss letters I have posted about low dose naltrexone for rheumatoid arthritis not only has there been tremendous results for ra but ms and some cancers in high doses i. Is uused to people with some addictions. For ra I believe that you don't have to try other medication first but you would need to type in low dose naltrexone in utube and check it for yourself

[Hidden in reply to Rocky07]

Hey Rocky - you can always edit your post even after you hit reply. Just go to the little down arrow and select edit, then make the changes and save it. I found that a few months ago when I was trying to correct something...

[Multijo]

I will. Thank you Rocky

[helixhelix]

If you put LDN in the search box on here (top left) you'll find posts about it. Seems it works well for some.

[Eiram50]

Thanks; I'll look into that further. Merry Xmas !

[Em13]

I take LDN. Hard to say exactly what it does for me because I also take HCQ and SSZ. However, it does help me sleep and keeps my spirits up, and it is without the nasty side effects of RA meds.

[Rocky07]

Thank you chaerj I am still getting used to this site I don't know where to go to see all replies I keep having to go back to my email as for ldn not many doctorstalk about it also I ddon't think its. An immune suppressan. LLike all the other drugs they give us I am from Australia and I will be looking into it much further I rang a compound pharmacy and what I was told was intriguing of course I remained anonymous as we all know to tread carefree wit the medical field. as we alsp have tohhave. proper confirmation. but the people need to know about ldn it is not right for is to suffer because of. Protocol s

[nomoreheels in reply to Rocky07]

When you receive a reply the bell symbol on the top bar should have a number beside it in red Rocky. Tap on it & a list of your notifications will appear, select your latest & that will take you to the reply.

[nomoreheels]

As naltrexone is a licensed drug in the UK, it can be prescribed for conditions other than that for which it is licensed if a doctor feels that it is an appropriate treatment. Drugs prescribed 'off licence' are the direct responsibility of the prescribing doctor, who will need to be convinced that the treatment is safe and potentially effective. Although LDN is relatively inexpensive, funding for off licence prescriptions may or may not be accepted by the local primary care trust.

Because LDN stimulates the immune system, it is suggested that it should not be taken by people also taking immunosuppressant drugs, or other drugs that reduce the activity of the immune system such as steroids. More at nhs.uk/ipgmedia/national/mu...

[Simba1992 in reply to nomoreheels]

Hello Nomoreheals,

I really do recommend you to go and read the info on LDN Trust webpage. ldnresearchtrust.org..

LDN is an immunesystem regulator, not stimulator. It has a calming normalizing effect as it also has shown to help with chronic pain. Immunosupressants are not a hinder for useing LDN even though cortison in high doses may decrease the effect of LDN. Naltroxen has been used for decades and has been approved as a safe med. LDN is only a very small amount of this med. LDN gives you an extra dose of endorphin that supports the normal immune system. Many highly qualified doctors have been using LDN for decades on their patients with AI diseases and have very good results. There are several ongoing clinical studies going on at the present. It seemes you can only gain by trieing LDN since it does not have any toxic side effects or interfere with RA meds. Narcotics are the only meds you cannot combine with LDN.

[nomoreheels in reply to Simba1992]

The text is lifted from the NHS Fact Sheet - Low Dose Naltrexone Multiple Sclerosis Trust Simba. This is the link if you'd like to read it in full nhs.uk/ipgmedia/national/mu... . I considered it an objective fact sheet as opposed to other info promoting or offering to prescribe LDN which is more likely to be a biased viewpoint.

Sorry, I couldn't open the link you gave.

[Simba1992 in reply to Simba1992]

I am sorry but the information that I cotrrected is nonbiased scientific facts if the the nhs hasn't got it right it's really a shame. As an example of incorrect information of the mechanisms of action in LDN is the effect on the immune system. If you want to learn more about the facts of LDN there is quite an amount of scientific analysis of the effect of LDN. LDN Trust is trying to make AI sufferers and doctors aware of something that has worked and helped so many AI sufferers, they are not spreading this information to make money and it is not in their interest to give out false facts.

[nomoreheels in reply to Simba1992]

I've read plenty of research on LDN, though it's not been limited to LDN specific websites. That way I've been able to form an accurate & unfettered view of the positives & negatives of it in relation to autoimmune diseases. This is how anyone doing research on any med be it approved or not should do, relying on info based solely on one perspective isn't necessarily reliable.

[Rocky07]

Hi everyone I am from Australia I have mentioned it on the post before but I heard about ldm through utube and I then contacted a pharmacy that makes it what I was told was intriguing not many dictors talk about it my next appointment I am going to find out why and why for ra they want to try us on all other drugs first with numerous side effects and ldn is effective with little side effects if any and if I am not happy with the response I will definitely take it further why should we suffer because of protocols

[Simba1992 in reply to Rocky07]

If you want facts and help with LDN, you should should go to the website I mentioned above. There are also three Fb groups that you can join to talk with people that are trying LDN and hear about their experiences.

It seemes to be very individual how LDN works. Some get immediate relief, for some it may take months and for 10-15% it does not seem to have any effect. Usually the effect is better combined with an anti-inflammatory diet. Very many RA sufferers do combine LDN with a RA med in the beginning, if the RA is aggressive. I hope you will find a doctor who will help you with the LDN treatment. Good luck😊