Hi all - hope you are doing well. I come here today with a question about iron deficiency anemia and rheumatoid arthritis. I have been anemic my whole life - I had PICA as a kid where I ate sand and crayons and other weird stuff because I had such a severe mineral deficiency and this wasn't detected until I was in my teenage years. I was able to correct the deficiency with iron transfusions and supplementation and I went through my twenties without an issue. I am 31 now and have had RA since I was 27 (that's a rough estimate because I wasn't diagnosed until July of this year). My iron was OK up until earlier this year when my RA became horrendous and I was finally diagnosed. So, the connection lies there.
As far as my RA goes, it's much better. I'm a paleo diet and things have really turned around, normal inflammation markers, RF went down, anti-CCP went down, but the iron is still an issue. I will attach a picture of what is happening. My doctors just tell me to keep supplementing it, but it's taking forever to go back up, even using liquid iron supplementation 4 times a day as directed by my rheumy. She doesn't show much of a concern and now I'm noticing that my binding capacity and transferrin are actually decreasing, while the iron and iron saturation increase. I will admit I really don't know what all of this means and I am hoping for the following by writing this post:
1. Does anybody else have an iron deficiency anemia with their RA?
2. If so, how did you improve your levels and what are they at now?
3. Can somebody please interpret my results for me who has better knowledge on the subject?