Hope life is treating you all kindly 💕 Just an update really saw my Gp for blood test results to be told Uris acid had risen? Month now on all drugs - still needing the loo far too often 😳 Told GP have tight chest also - He asked how long will I be on the steroid for? I said your the doctor you tell me? Reply you stay on All drugs until Rhuemy tells me otherwise 😡 I came away now with extra vitaminD as he says if I am going to be kept on it without this I will get Osteoarthritis 👊🏻 I came away thinking well what was that all about ! As every thing I asked he said to ask my Rheumy ! Oh and then he said if I got a temperature or fever to go straight to A@E owing to being on the high dose of Methotrexate 🤔🤔🙄 I left Doc's in a daze to go to chemist to collect repeat of all Meds , I swear the pharmacist looked at me in pity ( or I'm becoming paranoid) Went to drive home and just couldn't I just sat and cried and cried - what has become of me 😪 My life is no longer fun 😩 Sorry guys to sound so miserable, but I cannot bear what I have become 😱😱
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Doughnut61
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oh Doughnut61 go ahead a give yourself a good cry, let the stress out. Please know that your meds could "kick" in within the next month or two.
Our bodies naturally produce purine which turns into uric acid. Uric acid levels can increase because of drugs and certain food intake. Since you can not control your bodies natural ability to produce uric acid and you need the drugs maybe you can control the up to 10% extra purine with dietary changes. Worth a try.
You poor thing, you have a completely unhelpful GP! I suggest you move to another one that is prepared to do a better job and explain things better to you.
Your treatment should be part of a shared care agreement between the rheumy and the GP, and between them they should be looking after you rather than throwing you backwards & forwards like a tennis ball.
But please hang on to the fact that this is a temporary phase, and things will change for the better soon. Your life will be fun again, it'll just take a bit longer. Once the hydroxy and MTX kicks in you will be able to taper off the steroids, and you'll find yourself starting to feel better. Steroids always turn me into and emotional mess, alternately weeping or incredibly angry.
Thank you so much for your kind reply X I will change the Gp for sure X and I live in hope that things WILL improve 👯👯
Things will improve Doughnut61. I agree with Helixhelix. Your doctor should of explained your results in laymans terms. Get a new GP.
Here is a true story that happened to me with an inept nurse.
25 years ago I read on my premature baby's chart that my baby was mottled. I panicked and found the nearest nurse and told her. The nurse looked at me and said "OH NO! He's going to die!!" I broke down crying....turns out mottled on a premature baby is normal because they are always cold. They just had to turn up the heat on the incubator.
I am sorry that you had such a bad time. I am on steroids as I can't take NSAIDs. Just about to start to wean off them. I am also on vitamin d as I don't get enough.
Just remember that the light is at the end of the tunnel, even if some days it is hidden by a kink in the road.
Morning Doughnut, dont despair your drugs will kick in and you will start to feel a bit better, i do agree with the others though about your g/p. It wont be easy finding the right g/p for you but its do-able so make it your mission. Its so hard sometimes finding the motivation that everyone needs even the fit and healthy ones to do our everyday tasks but somehow we manage it. I have been known myself to shed a tear now and again when the RA is in full swing as we all know it bloody hurts. Having a rant and a good old moan helps sometimes to get things off your chest. Ive just woke up after another crap nights sleep (sore arm this time) and it makes it harder to face the day. But everyone on here understands you and we all know you understand us. Be strong Doughnut i know its not easy but giving in isnt an option. You take care now. Regards Gaza
That's right Dounut as the others have said try and be strong and give your Rheumy a ring and don't worry just let it all out we are here for you, things will get better I was the same in 2014 I thought my life was over as it hit me like a ton of bricks but I came out the other side and am improving every day and was at my appointment the other week and my consultant couldn't believe the difference in me, it took a lot off sweat and tears but I wasn't going to let this disease beat me so keep chin up and keep fighting
Keep your chin up things will get better. I agree you should find a better GP. I just went through that. I lost my GP due to a divorce and loss of his medical insurance. It took 3 GP's to find a good one who is compassionate and understanding of my RA and other issues. Take care of yourself.
That is an overwhelming thing to have gone through Doughnut61 . And it sounds like your doctor is an insensitive brute (who probably recognized that your questions were outsite if the range of his or her knowledge).
I am sorry you are so unwell right now. If you can, try to read about food that can help lower uric acid? It might give you a sense of a little bit of control.
You are certainly entitled to cry when your doctor kinda brushes you off. We do go to doctors to help us...it wasn't unreasonable of you to expect help!
Chin up. Do some Google searches for diet to give yourself some sense of control over what is happening to you. Hugs.
My heart is with you Doughnut61. I am about to jump back on the drug train. I will meet with an Internist first. Actemra is still new so limited data and no genetic info as yet. The drug developer does indicate Diverticulitis and Hypertension are a concern. Being Canadian has some advantages. I refused to start without first examining those issues.
This is the third Biologic so odds of success are slim. I have a great deal of pain but otherwise feel much better off drugs. The problem is I know what is happening beneath the surface. I have three grown children so giving up is not really an option. I sincerely hope the treatment helps make things tolerable for you💐
Sorry, just wanted to add. There are some very good sites which explain all elements of your current condition, in terms you can understand. One that comes to mind is RA Warrior. I focus on the sites which explain meds. There is also Creaky Joints. I never get information from health care team. In fact they get perturbed because they often do not know the answer. I have been doing a great deal of research. The information on line is widely available and for all levels layperson or physician. I also find the most reliable information has come from other patients. But I like to take a drive, blast the music and vent lol. Sometimes you just need to yell lol🙊
It's so important to vent one's frustration and this is the one place you can do that and know there are people who will hear your cries for help no matter how big or small. I do hope you will be treated better by your doctor and rheumatologist. They are there to help you, not harm you, so please get the answers to your questions. When I am confused and overwhelmed with my RA I get someone to go with me to my appointments to ask the questions I forget to ask and remember the doctor's answers. Hang in there brave one.
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Humira & me...... And the impact when it goes very wrong 😞
My Last steroid injection, plus blood results......
Dis-appointment
