It's that time of day...

I am in such a pickle I feel likea gherkin!!

I have been awake since 3.42...and 20 seconds... pip pip pip..

I am I suspect having a "flare". Makes me sound like a bloody rocket... I had to retire early last night, had done too much yesterday because I felt so well... I will never never blooming learn.. now I can't flippin' well sleep. My knees are on fire, and my elbows ache, I can't lie down because my hips and feet hurt, can't sit up because my back hurts. I can stand for a while until my hips hurt...

So I have taken my pain killers and am swallowing a cup of red bush tea until I can feel the old co-dydramol kick in and will go back to bed. Hey ho...

It's now 5.15 and my daughter is about to take her boyfriend to work. on her day off.... it must be love!

I shall pootle back to beddie byes and try not to wake up Mr Shepherd, who has his first full night in bed since go knows when because baby Shepherd took over lambing duties last night, sorry mate!

I shall see you all on the Christmas Tree (my old dad used to say that and I still don't know what he meant!)

Night... Julie x

[Hidden]

join the flare up club.!!. up since 3am. w could have an early morning blogging, club. guess this could be why emma, said shldnt give people my mobile no,, though I credit peple would ring me before 8am and after 930pm.. as we are all fairly normal excepting our ra . wink . wink xx

Think you need to take time off from lambing etc and rest up a bit...

[Tricia-P]

I agree and early blog club sounds great, I was swigging the oramorph at 3.00 am or was it 4 as my bedside clock doesn't change it self and I wasn't sure if Hubs had done it.

Ali you need to put a boot up the rheumys bleep in Gloucs and ask them to get you on a trial for AntiTNF.

Jules how far have you got down the list of meds are you on steroids?

I think we should do a list of all the bleep we are taking to treat RA then add the pills and potions we take to stop the side effects Come on Ali your the Pharmy start the list off it will be a form of bingo or lottto.

see you later when I'm beautiful coiffed

Tx

[Hidden]

20mg. prednisolone. 15/500mg co-cocodamol, 10mg, amitriptiline, 2mg diazepam if can get some form doc.. had some last from late 2009 so hardly addicted!! emergency use!, 60mg etorcoxib, ranidtidine (recovering from methorexate! also additional protection from etorocoxib, though chose this one as not bad on stomach! (alverine citrate as when as metho affected bowel

gold injections... have you fallen asleep yet, I have my own personal pharmacy at homel)

[Hidden]

Well it's funny you should ask... I have heard people say that the way to attack RA nowadays is to hit it hard at early diagnosis so knock the knickers off it before it gets to grips. Not so in my case, I don't know, perhaps others can say whether this is normal.

I was Diagnosed 23rd October 2010

Took first Methotrexate 28th December 2010 (worked up to 15 mg from 10mg over 6 weeks) Increased to 20 mg 4 weeks ago approx.

Nothing else.

Except.... errr 20mg Omeprazole,

20 mg folic acid

20mg Fluoxetine

Apart from that I just take painkillers - Co-dydramol (10/500) and Ibruprofen 400mg three times a day.

[emandedmum]

You can't sleep and all I've done today IS sleep. I feel shocking. Not sure if it's MTX increase or a virus of some sort but feel I have wasted another day in bed (no children today!). At one point I was hallucinating and though that my children were peeking through the gap in the door. Bit scary. Probably won't be able to sleep tonight now, might have to be double dose of Amitriptyline x

[Hidden]

Hi Julie,sorry your not well your drugs may need reviewing it depends on how long you have been on that mix.

Don't be afraid to keep nagging you GP/consultant/RAnurse that's what they are there for.

Compared to me and I would say Lyn (hope she agrees)you have been hit hard and early (if you know what I mean) Took them 12mths for my diagnosis and to be put onto anything useful which at that time was only sulphasalazine as now they hit you straight away with MTX I had to wait years for that as it was not widely used then. Now of course I have to suffer the horrendous joint damage. But hey things could be worse for me I suppose.

But, please try and rest with just a little gentle exercise. I know its difficult especially when you feel so well one day and think oh I can get this done and that done today you feel like you have to make the most of a good day but I'm afraid it doesn't work like that (and I think you Know that!!)

Learning to pace yourself is the key to having some control over the RA whereas at the moment its controlling you.

So be a good girl and have some rest lol!!!

sorry to go on

mand xx

[Hidden in reply to Hidden]

Thanks Mand. You are so right. I wasn't sure about the meds, I suppose the Mx is a pretty hard drug to start on so I am lucky in that respect.

I shall try to give in a bit more, but because I feel and sound so good everyone thinks I am getting back to normal and I am back to square one with trying to convince them that I need to stay home! It's one big roundabout and I am getting giddy, lol.

Thanks for the advice, appreciate it.

Julie x

[Hidden]

tried sulphasalazine first.... ended up in hospital for a week aaagh.. hell on earth,, it didnt suit me.., metho was ok for 8 months.. til the dose went up... but i am a sensitive little flower its good for most people ...