Had my PIP assessment today, both feet, left hand and both wrists in absolute agony but this meant nothing to "the nurse" who was more interested in what I can do as against what I struggle to do or cannot do. Ann had a copy of the letter sent to my Doctor's from my rheumy showing all the results and there it was in black and white "strong positive rheumatoid factor and anti-ccp, xrays taken etc etc etc" so why was she asking me if I personally can prove I have RA??
The fact my left hand was locked whilst there, the fact my 2 outer fingers on my right hand are pulling away from my middle finger and the fact the bone under my big toe on my right foot is 2-3 times bigger than it was 2 weeks ago and that I wear shoes 2 sizes bigger than I normally do is apparently totally irrelevant. Ann just asked questions in robotic form with no sign of any compassion- it just seemed that she was doing her job! questions like "can you hold a book?" yes I can but then my hands lock after about 10-15 minutes, "but you can hold a book though?" yes, as I just said I can for about 10-15 mins before my hands lock, "but you can hold a book though?" don't think it mattered how many times I gave the same answer as long as Ann was hearing I could hold a book. (between you and me, I can for about 10-15 mins then my hands lock, but don't tell anyone else!!)
must admit I didn't get the feeling of the big brother stories we hear about on here, there were thankfully no stairs, Ann opened the door to her room for me and I didn't see any people loitering around outside checking on people as they left the clinic, but the feeling that nothing I said seemed to matter left a bitter taste, especially after seeing other people in there laughing and joking and acting completely normal in the waiting room while I was in pain and feeling guilty about being there.
oh well. that's my rant over and done with and 2 hours of my life I will never get back.
I'm at hospital with my rheumy tomorrow so let's see what that brings.
Good luck to everyone on here and hope you all have a pain free night, and keep Rockin' and rollin' \m/ \m/