Hi All. Not posted for a while as been well since my 3rd cycle of Rituximab last July ( should have been May but hospital messed me around and was quite unwell by the time finally booked in!!!). Anyway long story short it seems to start wearing off on me about 2 months prior to the year mark taking into account it takes 8 weeks to kick in I get about 6 good months with no pain or stiffness. Trouble is visited consultants under study in May told her it was starting to flair and I was told they would nip it in the bud before I got worse this time only for her to tell me NO you're more thank ok at present we can't justify the budget until you are a lot worse!!!!!! Jumped up little cow were my first thoughts, so I've hung on now filling crap in a morning struggling getting ready for work and struggling with my knees and stairs. Rang up today and now have to wait for apt to see rheumy nurse then again to be booked in!!!! Am under Nottingham University Hospitals Trust has anyone else experienced this????
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