I have been reading lots of post on here and have picked up on something that I am worried may become a problem so am looking for advice on how to deal with it proactively.
My whole illness actually began way way back with stiffness and pain in my neck and between my shoulder blades. I initially had Physio which did nothing and then was just in the process of wondering what to do next. When I woke up one morning unable to move and in agony. I was immediately put on steroids and in the drama of everything else that was going on I more or less
Forgot about the back stuff.
As part of the diagnostic process my registrar wanted me to come off the steroids so that she could do spine MRI and hand intra sound and get a diagnosis that would enable her to stick me on DMARDs. As I reduced the steroids I got terribly I'll again and the hand ultrasound screamed inflammatory arthritis. So she duly started me on sulfa. However despite the fact that my back was absolutely killing me the MRI showed nothing. At the time I didn't realise that this would be in anyway significant but now that I read more it seems
That sulfa (which I am no longer on) and mtx don't help the spine. Is this true??? And if so, how do I persuade her that despite what the scan says I KNOW that there is a problem in my spine.
Plus is there anything out there which actually can help my spine? And ( last question) does this mean I have an even worse prognosis than if it was not in my back??
Sorry for all the questions. I am seriously g the registrar on Friday and need to know how to approach this.