It's so interesting the journey leading to being seen and diagnosed by rhuemotolgy. I suffered for months whilst attending gp who treated me with steroids, anti inflammatories and various painkillers before an urgent referral was sent to rheumy. I waited the best part of a year before actually seeing him but once I had, within a space of 3 weeks I had numerous tests, MRI etc and was diagnosed with ankylosing spondylitis and peripheral RA.
Unfortunately , the disease is very aggressive and in the past 1.5 years, I've had both hips replaced, both knees replaced and operations on feet. I'm currently on my 2 nd biologic and on 20 mg of mtx as well as various pain killers but nothing seems to be slowing it down. There is now talk of my elbows needing replaced and possibility of operation on spine!
I have 3 kids still at home , the youngest being ten.
How do people keep going in the face of such an unforgiving disease and stay positive and optimistic re the future??
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