read thru' blogs this morning & thought of moving to Spain 'cos the wet & gloomy weather certainly seems to make RA worse & I'm feeling it too.
Yesterday I got a second letter from my Rheumatologist (provisionally diagnosed with Psoriatic Arthritis last week.) First off, the blood tests results depressed me - I knew what they were already but seeing them on paper is worse somehow, makes it harder to ignore the nasty things that are happening below the surface while I feel superficially okay-ish on Prednisolone high. ('Tho I do feel a bit strange & sleep is shallow.)
Then I realised that the Rheumatologist who so impressed me - she was caring, she was kind - had written a work of fiction with a lot of loose ends to boot. For example she'd told me I'd hear from the hospital about seeing Rheumy nurse for first MTX dose this week but no mention of that in letter, it just implied I'd get MTX from my GP. The letter also said she'd explained the possible side effects of Methotrexate to me & given me a leaflet about it. That's rubbish! Noone's told me diddley squat about medication. No mention, either, of the Dermatology appt. she said she'd make to further investigate the diagnosis of Psoriatic Arthritis or of completing the aspiration of my left knee which did not work & which she said needed ultrasound guidance.
Phoned GP practice and had to wait till this morning for a GP to phone me back. I went over all the things in the letter that were wrong - there were 5 main things - & he phoned the hospital. Then he phoned me back & said there were a lot of problems with this Rheumy's clinics (she's a Locum who has left now) & they will therefore try to bring forward my next appt. with the new Rheumy to get things on a more even keel. (And I'll get MTX from GP pharmacy today & read about it on the 'net.)
However, I'm now doubting the diagnosis - yes, it was provisional, but obviously seems that little bit more provisional now. And basically I'm starting MTX on Sunday without anything with a pulse ever having told me what it's all about. Damn good job I can read! But, you know, the human touch counts for a lot.
Thank goodness for this group. I'm so pleased for the person who got her promotion & totally understand .... (was it Creaky??) loving having her family around her. I find I just want to be around people I care about at the moment & am scared stiff of alienating them by being obsessed with what is happening to me. Am working on that one!
Hope everyone has a great weekend, Christina xx