pip: im in a bit off a dilemma what to do,i currently... - NRAS

NRAS

37,276 members46,139 posts

pip

popsmith1874 profile image
24 Replies

im in a bit off a dilemma what to do,i currently get pip and standard in care component and standard in mobility as well,but my mobility is worse now and i can barely walk plus i cant plan a journey now as im also having memory problems and i think i should be in the enhanced rate in mobility. my award is due for review in 2018 and im frightened if i ring them i maybe be worse off, but my health is went down hill since 2014 and ra and oa still active so dont know what to do for the best

Written by
popsmith1874 profile image
popsmith1874
To view profiles and participate in discussions please or .
24 Replies
earthwitch profile image
earthwitch

As you have realised, you will be completely reassessed, and therefore run the risk of losing your PIP or having to go through all the processes of appeal to get what you are entitled to. I have been in a similar situation, and I had a long hard think about what difference it would make to me to have the higher award, and in the end decided that I would wait until my current award was due for renewal (which wasn't as long as you will have to wait). You may decide differently, but it really is up to you whether you try for a reassessment or not. It may help to read through all the advice on applying for PIP again, so you can be very sure that you do actually meet the enhanced criteria, as they are very strict on that.

popsmith1874 profile image
popsmith1874 in reply toearthwitch

Aye I've seen a lot off people lose their enchanted rate so I think I will leave it as it is xxx

sylvi profile image
sylvi

Tell them that and they will send you a new pack to fill in and tell them how bad you are darling.xxxx

smithfield profile image
smithfield

Hi popsmith

From what you have said in previous posts you are struggling with pain and that is affecting your mobility more and more.

It might help you make a decision if you took some advice from CAB.and I believe there are probably a few other organisations that could be of some help.

Or what about a chat with your GP or rheumy team next time you see them, they must of seen a change in your condition and how it is affecting you.

It is dreadful that this benefit was introduced to assist people who needed it, but since the change to PIP and the strangle hold on the Welfare Budget. People in need are frightened to claim despite a change in their needs

All the best

Smithfield.

popsmith1874 profile image
popsmith1874 in reply tosmithfield

I'm giving my Rheumy a ring in a we while as I've been waiting since Febuary to see if my funding for Biologics is any further forward because it's a waist of time taking the mtx , sulfazalasine and hydrocloroqine as they are not making a blind bit of difference and I can't wait until August for my next app as I'm in agony all over

smithfield profile image
smithfield in reply topopsmith1874

as you know I am still waiting for my biologics to start , I have been phoning the team on a regular basis for updates. And had three different stories of my file going missing. Finally last week I heard my funding has been agreed but I am still waiting to hear from the health team for a delivery and training date. But it took a lot of phone calls and pushing. I am not even border line on the criteria my DAS it Is way over the 5.1. And some days, like you I just could not be bothered to chase it, I was in to much pain and had no energy.I really hope you get some positive news today.

I take hydroclorquine and other drugs and they do nothing for the pain.When I queried continuing. I was told to keep taking it as it would help when I started on the CIMZIA.

All the best hope you get some positive news today. Why is it taking since Febuary.?

Smithfield

popsmith1874 profile image
popsmith1874 in reply tosmithfield

I phoned the consultants secretary. Yesterday and she said I will be getting screened in the next couple of weeks and I've to get a steroid injection to tide me over , just as well I phoned as I think you have to keep pushing them to remind them

smithfield profile image
smithfield in reply topopsmith1874

I totally agree, but you have been waiting since February and that seems an awful long time. Lets hope the screening process is quicker.

Hope the steroid injection is working.

tinaparkii profile image
tinaparkii in reply tosmithfield

cab dont deal with pip any more im going threw welfare rights about it atm

smithfield profile image
smithfield in reply totinaparkii

Thanks for up dating me Tina.CAB were probability inundated.

tinaparkii profile image
tinaparkii in reply tosmithfield

ask them for a home visit, if u do ask for early assessment , its all so different now to what it was, just hoping my appeal goes well, but wait to see what welfare rights say when i see them on the 15th june x

nanof6 profile image
nanof6 in reply totinaparkii

SOME ONE IS COMMING T O ASSES ME ON THE 9TH OF JUNE AT MY HOUSE, I WILL LET U NO HOW IT GOES IF U GET BACK 2 ME

tinaparkii profile image
tinaparkii in reply tonanof6

ok good luck fingers crossed xxxx

I in the same position and dial gave me advice I know you are to inform DWP of changes this will trigger reassessment I am awarded till 2017 but can be assessed from June 2016 so they advised me to wait you can loose your claim or they could increase it such a lot of people are loosing out

attatel profile image
attatel

Hi, it's so difficult to make a decision about whether to rock the boat or not! I agree that if possible you should try to get advice from CAB or a similar agency before you decide. Also there's a very good website called Benefits And Work that has loads of excellent advice and brilliant guides to filling in forms, how to handle assessments and the appeals process etc. There is a smallish subscription to get some of the info but I found it invaluable when I was being assessed for support group for ESA.

If you do decide to go ahead, definitely have someone with you and ask to have the assessment recorded.

Best of luck with it!

nanof6 profile image
nanof6 in reply toattatel

ATTATEL IF U R GENUION WHATS THE PROBLEM, SAY IT HOW IT IS

attatel profile image
attatel in reply tonanof6

I don't really understand what you're asking me? I'm a real person with RA who's been on benefits for years. I used the website I mentioned and found it really helpful so I thought I'd pass on the info. I get DLA at the moment and don't want to ask for a reassessment myself because I'd have to go on to PIP and I'm scared I might not even get it, so that's why I said it's difficult to know whether to rock the boat.

nanof6 profile image
nanof6 in reply toattatel

attatel everyone is being taken off dla and you have to re aply and its called pip, i dont no if they are doing it by alferbet or age, but they will get to you

attatel profile image
attatel in reply tonanof6

Yeah, I know. Dreading it. :-(

tinaparkii profile image
tinaparkii

wish u all the luck in the world with it hun, i was on high dla both mob and dis when i ad my reveiw for pip i was knocked of mob fully and got the standard dis, joke, my health has more than worsened in every way, but the so called woman who done my accessement was a joke, she asked questions in a way i was only to answer yes or no, soo cudnt give the answers i needed to and she told blatent lies , i am appealing atm but only time will tell, lost my bus pass so dont ever leave house any more, didnt use it often as dont go out but come in handy when i needed to go somewhere

nanof6 profile image
nanof6 in reply totinaparkii

so sorry to hear that good luck with the appeal, let me no how you get on tinaparkii

Ali_H profile image
Ali_H

Hi,

If you go for the reassessment option I would be sure to have someone with me.

All the best

Ali

popsmith1874 profile image
popsmith1874

Yes that is the problem I am genuine as well but it doesn't matter with these people who do the assessment they just want to cut as much as they can and when genuine people with disabilities go they are the ones that suffer

nanof6 profile image
nanof6

oh god im scared now, someone is comming to my house on the 9th to assess me, now hearing this oh. i saw in the papper april somewone had leeked a letter, it said the goverment was going to make the tribunral so expensive so nobody would bother

Not what you're looking for?

You may also like...

PIP

Got my "Decision" letter yesterday after 6weeks wait from face to face assessment. Even tho they...
Martinilady profile image

PIP update

Had my assessment through this morning and been awarded enhanced care but standard mobility. Got...
Pulfs profile image

PIP

Hi everyone Just received the outcome of my assesment on 28th September and I am absolutely fuming....
trish1957 profile image

Dreaded PIP - possible reduction for worse health!

Hi. I suffer with severe RA. Last week i contacted PIP to advise a change in circumstances. My...

PIP

I have just received my brown envelope, I have got my PIP standard personal care and the full 12...
fastball profile image

Moderation team

See all
KateL-NRAS profile image
KateL-NRASAdministrator
Donagh-NRAS profile image
Donagh-NRASAdministrator
Nicola-NRAS profile image
Nicola-NRASAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.